Category Archives: Health, Healthcare, Support, Science

Ideas for Making Health! [#makehealth]

#NationOfMakers #MakeHealth

Remember I said the idea of the UM We Make Health Fest began with hearing about the White House’s first ever Maker Faire? Well, that is TODAY!!!! The map above shows some of the activity nationwide with people being part of a Nation of Makers. Remember I said, “You have to talk about health. There is SO MUCH going on with bringing the Maker Movement to health!” Then our team went off and brainstormed. Here is a list of the ideas we came up with, almost all of them in the first week of brainstorming.

3D printing
Arduino
Beaglebone
Beekeeping
Biohacking
Biopunk
Coding – PHP
DataViz for PDM
Design Thinking
Big data for relationships?
DIY Apps
DIY Biology
DIY Clinical Trials
DIY Devices
DIY Ergonomics
DIY Genomics
DIY Laboratory
DIY Medicine
DIY Neuroscience
Foraging
Gaming for Health
Hackerspace & Hackathon
Healthy eating: vegan
Home hydroponics
Individualized Medicine
Makerspaces
Microbiome
Mobile Technology
N=1 Studies
Open Source/Open Access
Participatory Medicine
Personal Genomics
Personalized Medicine
Precision Medicine
Quantified Self
Quantified Us
Quantified We
Raspberry Pi
Robotics
Robotics 4 Kids
Self-Hacking
Self-Tracking
Sensors
Solar Cells
Sustainable Design
Sustainable Gardening
Synbio
Wearable Technology

What do you think? Maker Movement + Health might actually be a real thing, eh? As we continue to plan and prepare our event, we’ll be posting more information about the specific ideas that will actually be at our Make Health Fest. Meanwhile, for today, I’m proud to be one of the many makers, from a family of makers, at a University of Makers, in our Nation of Makers.

Beginning to Make Health [#makehealth]

Cool Toys Pic of the Day - Maker Movement Meets Healthcare
Cool Toys Pic of the Day – Maker Movement Meets Healthcare

In the blog series “Health Fair Meet Maker Faire” (parts one, two, and three), I was talking about the exciting idea of looking at commonalities between the maker movement and the shifting landscape of patient engagement in healthcare.

We went wild with brainstorming and excitement. I’ll share more of the ideas we developed here in the next post on #makehealth. (Oh, #makehealth is our hashtag. Feel free to use it, and we’ll be tracking it.) At that time, no one had done a health-themed Maker Faire, but what we didn’t know was that there were some others in the works. After all, as we had noticed, it seemed like a really obvious idea! Evidently so. We did immediately notice the collection of health-themed maker events collected by Make Media.

Maker Faire: Health: http://makerfaire.com/category/science/health/

I took the just the first page of their entries and looked at the subject headings used for those to get an idea of the topics being tied into health makering.

3D Printing
Arduino
Art & Design
Bicycles
Biology
Biotech
Craft
Crochet
Culture
DIY Projects
Education
Electronics
Energy
Engineering
Food
Fun & Games
Gadgets
Getting Started
GPS
Hacks
Hands On
Health
Home
Invention
Kids & Family
Knitting
Maker < 18yo.
Makerspaces
Media
Open Source Hardware
Raspberry Pi
Robotics
Science
Scratch
Sewing
Start Up
Sustainability
Toys
Wearables
Writing
Young Makers

Pretty cool list, isn't it? Really, you should go explore their collection. For me, the coolest one to find was the post about MakerNurse.

Makers in the Nursing Unit: Lessons Learned from America’s Amazing MakerNurses: http://makerfaire.com/makers/makers-in-the-nursing-unit-what-weve-learned-across-america-finding-amazing-makernurses/

Whoa! What great stuff!

RWJF: Seeking DIY Nurses – New MakerNurse Initiative Launches http://www.rwjf.org/en/blogs/pioneering-ideas/2013/09/seeking_diy_nurses.html

The MakerNurse group partnered with Maimonides Medical Center to have the VERY FIRST health-themed maker faire!

A Hospital Mini-Maker Faire: http://makezine.com/2014/05/30/a-hospital-mini-maker-faire/

Facebook: Maimonides Medical Mini Maker Faire: https://www.facebook.com/MaimonidesMedicalCenterMakerFaire

Now, pause for a moment, and think, “What would YOU want to see in a health Maker Faire?” Here are just a few posts and tweets about what MakerNurse has been up to. Have any more ideas?


Makers in the Nursing Unit: Lessons Learned from America’s Amazing MakerNurses – Jose Gomez-Marquez http://www.youtube.com/embed/iQkQabDKoFY

CLASSIC MAKERNURSE: ADDING A SPLASH OF COLOR TO THE ORTHO WARD: http://makernurse.org/2014/01/20/classic-makernurse-color-ortho/

MADE BY A MAKERNURSE: IV SHIELD: http://makernurse.org/2014/05/22/made-by-a-makernurse-iv-shield/

RWJF PIONEERING IDEAS PODCAST: FEATURING 3 MAKERNURSES: http://makernurse.org/2014/05/31/pioneering-ideas-podcast-featuring-3-makernurses/

MakerNurse: The Stealth Ingenuity of Inventive Nurses in America http://makerfaire.com/makers/making-for-health-medical-making-around-the-world-and-at-home-in-america/

ONC Partners with Dr. Oz to Spread the Word (#BlueButton) — Hashtags of the Week (HOTW): (Week of June 16, 2014)

BlueButton on Twitter

The Blue Button was some of the biggest buzz at Health Data Palooza. Following #hdpalooza, the Office of the National Coordinator for Health Information Technology partnered with the famous and popular media personality, Dr. Oz through his affiliated service, ShareCare, to co-sponsor a Twitter chat about the Blue Button and what it can do for the American people. For those who haven’t already heard, the Blue Button is a tool for accessing your personal health records.

I’m taking this opportunity to also show you some special Twitter search features and how they work. Today, I’ll cluster the examples by type of search, and in Part 2, I’ll show how to do these special searches.

REGULAR SEARCH

SEARCH PHOTOS

SEARCH VIDEOS

SEARCH NEWS

SEARCH LINKS


First posted at THL Blog: http://thlibrary.wordpress.com/2014/06/17/onc-partners-with-dr-oz-to-spread-the-word-bluebutton-hashtags-of-the-week-hotw-week-of-june-16-2014/

Infographic of the Week: Learning in the Digital Age—“I Was Pleasantly Surprised”

Infographics in research articles?
Jeffrey Bartholet. Student Poll: “I Was Pleasantly Surprised.” Special Report: Learning In The Digital Age. Scientific American (2013) 309:72-73.
http://www.nature.com/scientificamerican/journal/v309/n2/full/scientificamerican0813-72.html PDF:

I was indeed surprised when I stumbled on this research article, went to read it, noticed the image thumbnail, and thought, “Oh, my goodness, that looks like an infographic!” And it was! We’ve been talking about infographics a lot lately. Our library is talking about the roles we could play as librarians in supporting infographic development for our institution and faculty. There were multiple presentations about infographics at last month’s Medical Library Association Annual Meeting. Also in the past couple months I’ve attended a few presentations about uses of infographics to promote research findings, for marketing, or health literacy outreach. But I had not noticed that infographics have crept into the actual published and printed versions of scholarly research articles!

This one was about MOOCs, which is another interest. I’ve taken (read “lurked in”) several MOOCs, without ever completing one. I have learned useful skills relevant to my job from a MOOC, but when push came to shove between the MOOC and my real life, real life won. Or just feeling tired won. This summer is different. My son and I are taking a MOOC together, watching the videos together, discussing the assignments while we do them. I’m going to be really embarrassed if my son finishes and I don’t. I’ll be even MORE embarrassed if I bomb out and my son takes that as an excuse for him to quit. So I was very interested in this piece of research on how MOOCs are used in science education.

“One in five science students surveyed by Nature and Scientific American has participated in a MOOC—and most would do so again”

It’s worth reading the whole short article. Here are just a couple small snippets highlighting key points.

PRO:
Stefan Kühn: “I started the course because of personal interest … and was pleasantly surprised when I realized I was using it for my write-ups as well.”

CON:
Kathleen Nicoll: “Although some classes try to mimic research experiences in a virtual lab, that cannot substitute ‘for smelling formaldehyde or seeing something almost explode in your face and having to react to that.'”

PRO:
Kathleen Nicoll: “One of the huge upsides is that MOOCs can reach everyone [with a computer and Internet]—people who are differently abled, people behind bars in prison.”

CON:
Jeffrey Bartholet: “Because failure is cost-free in a MOOC, the basic human tendency toward procrastination and sloth are stronger than in traditional classes.”

PRO:
Shannon Bohle: “I like to share with my friends that I finished the course and hear everyone say, ‘Oh, you’re so brilliant. Kudos to you!'”

It also didn’t hurt my interest at all to hear about what specific courses these students and faculty found useful. I might actually want to take the one recommended by Kühn, Think Again. The infographic itself also contained some surprises. I didn’t realize that any universities were requiring MOOC participation for their residential students! Or maybe I’m misinterpreting that question? It made sense that people find superior career value from taking classes face-to-face. Hard to make a connection in a MOOC that could turn into a person willing to write a letter of reference for you. But it was surprising how the perception of learning value was almost equal! Here’s the infographic – what surprises you?

MOOCs: I Was Pleasantly Surprised
Image source: Scientific American

Health Fair Meet Maker Faire! Part 3: Our Announcement!!

You saw Part One, in which the idea was born, and Part Two, in which the concept was tested and proven. So what actually happened? We’re doing it. We’re really DOING IT! By “it” I mean a health-themed maker faire/fest at the University of Michigan. REALLY!

WHAT:

We Make Health
We Make Health: http://makehealth.us

Emily Puckett Rogers had given us a heads-up about requirements for working with the official Maker Faire folk, which I had not realized was an actual brand name. So we don’t yet know if this is going to be a Mini-Maker Faire or a Maker Fest or what, but it is definitely happening!

Please note that the We Make Health event is a project of Health Design By Us, a participatory behavior change project funded as part of the UM Provost’s Third Century Initiative. It’s a completely awesome and wonderful collaboration, and you’ll be hearing more about it if you read this blog regularly.

WHEN:

Saturday, August 16, 2014

We are still settling on what happens when during the day. We are brainstorming roughly 10am to 6pm, but that may change.

WHERE:

Google Map for Palmer Commons
Palmer Commons: https://www.google.com/maps/place/100+Washtenaw+Ave/@42.2807486,-83.7335814,17z/data=!3m1!4b1!4m2!3m1!1s0x883cae4266554837:0x732dcfa6f8fb7dbe

WHO:

Joyce Lee, Doctor as DesignerPF Anderson, Self Portrait as ShadowMatt Kenyon, Artist

Us! We!

Well, Joyce Lee, Matt Kenyon, and I are taking point on planning the project (with the capable assistance of Emily Hirschfeld). Joyce is from the UM Medical School and Mott Children’s Hospital, Matt is with the School of Art and Design, and I, of course, am part of the University Libraries, Taubman Health Sciences Library. However, we have an email list for folk interested in the event which currently has over 90 people signed up. Many of them have contributed ideas, suggested contacts, volunteered to do booths or presentations, and so forth. We are reaching out to many community maker communities, and have received endorsements from several of them. You’ll hear more about our partners as the event moves closer.

CONTACTS:

1) Sign up at the We Make Health web site to receive information and updates from the Health Design By Us project.

2) If you are part of the University of Michigan, you can sign up through M-Community for the MakeHealthUM email list.

3) If you want to contact the event coordinators, our Make Health Team, you can reach us at: MAKEHEALTH at-sign UMICH dot EDU.

4) Twitter! The event itself is on twitter, as is Health Design By Us.

Make Health: @MakeHealthUM
Health Design By Us: @HealthByUs

If you want to chat with Joyce or me individually, we are also pretty easily reached through Twitter:

Joyce: @joyclee
Patricia: @pfanderson

5) Please feel free to comment on this post! We will have a blog for the actual event, but that’s still being set up. More soon!

WHAT’S NEXT:

What’s coming next is more blogposts and more news! We will highlight some of the technologies and people that will be highlighted at our event, the partners we’re working with, and exciting spinoff projects to help the energy last beyond the actual event. We’ll tell you more about some of the other folk working on health maker events, and other maker communities around the University and the Ann Arbor community.

Health Data Palooza (#hdpalooza) — Hashtags of the Week (HOTW): (Week of June 2, 2014)

Health Data Palooza

“Health Datapalooza is a national conference focused on liberating health data, and bringing together the companies, startups, academics, government agencies, and individuals with the newest and most innovative and effective uses of health data to improve patient outcomes. … The hallmark of the event is a national competition that searches for the best and most innovative uses of health data in apps and products. The competition culminates in live demonstrations of the winning applications to Health Datapalooza attendees.”

Top 10 Datasets for Health Hackers: http://rockhealth.com/2014/05/top-10-datasets-health-hackers/

App Demos: http://healthdatapalooza.org/agenda/live-app-demos/


First posted at THL Blog: http://thlibrary.wordpress.com/2014/06/02/health-data-palooza-hdpalooza-hashtags-of-the-week-hotw-week-of-june-2-2014/

Infographic of the Week: Using Social Media as a Crisis Management Tool

Bizarre infographic story

At first I chose this infographic because I loved what it said. I’m a big fan of “SMEM,” a.k.a. “social media emergency management,” so I hoped that putting an infographic about this on my door might get a few folk to read part of it as they went by. Then I did more digging and found it makes a very interesting story.

Last winter, the folks at Emergency Management Degree released an infographic which they had (evidently) hired another company to make. The original infographic is available here:

http://www.emergency-management-degree.org/crisis/

Unfortunately, while it says who came up with the content, does a lovely job of citing original sources, and names the designers, they neglected to include either a copyright statement, a Creative Commons license, or the date it was made. To verify when it was released, it was necessary to look at blogposts that cited it. This was the earliest one I could find.

Infographic: Using Social Media as a Crisis Management Tool, February 11, 2014 http://blog.missionmode.com/blog/infographic-using-social-media-as-a-crisis-management-tool.html

The one I found and printed for my door was, however, not the same one. The original infographic was taken by a firm in India, and remade or “jazzed up.” They preserved all the original content in the same sequence (except for the names of the designers), kept a similar color scheme, and made it look different. Frankly, the original one is better designed and the remade one uses a lot of clip art. I don’t know if they were asked to do this for the blog on which I found the redesigned one or if it was their own idea and the blog simply stumbled on it. In any case, everyone links back to the folk who came up with the original content, so it is only the design that changed. Well, and the company from India that remade it added a few typos, probably because English is a second language for them? Here is where I found the redesign a couple weeks ago.

Social Media Makes a Powerful Crisis Management Tool: Infographic shows just how vital a firm grasp of social media is for crisis management / By Jonathan & Erik Bernstein on May 9, 2014 http://managementhelp.org/blogs/crisis-management/2014/05/09/social-media-makes-a-powerful-crisis-management-tool/

And that explains why I have an infographic with typos on my door. You probably want the original, so here it is!

Using Social Media as a Crisis Management Tool
Image source: www.emergency-management-degree.org

The Neel Lecture — Hashtags of the Week (HOTW): (Week of May 12, 2014)

In the HOTW posts (Hashtag of the Week) we usually collect a bunch of tweets to illustrate topics or concepts. There are a few posts that mention Twitter tools, but not a lot. Today I’d like to talk about Storify, and am using the opportunity of having this morning livetweeted the James Neel Lecture by Richard P. Lifton. Livetweeting means to tweet about something while it is going on in real time.

To prepare for livetweeting I open web pages for the event, the speaker, and some of their articles. I make sure there is a good hashtag that isn’t likely to be misunderstood as being for something else. I check to see if it is possible to create an automatic archive of the event tweets. I also usually ask permission, if there is a chance. If there is not a chance to ask, the assumption is that events open to the public are permissible to tweet. (NOTE: If you are organizing an event, remind speakers to tell folk if and when they do NOT want things they say to be tweeted!) In this case, Dr. Lifton granted permission, with the caveat of excluding the portion of the presentation on current unpublished research. When he got to that part, he said, “Please don’t tweet this slide.” It works.

After the event finished, I was able to push all the tweets into a tool called Storify to create a kind of ‘story’ for the event. The tweet at the beginning of this post gives a link to the Storify for this event. While a Storify can be embedded in a web page, just like Youtube videos and tweets, it isn’t something that fits well in this blog, so I encourage you to go look at it there.

As you look at the Storify, you’ll notice that, as is usual with the blogged tweets, the individual tweets will show photos or certain other kinds of content. You may notice other content in addition to the tweets! There are pictures and links included, and even readable scrollable copies of entire article PDFs! Being a really academic presentation, this one was studded with research articles. Some of them are articles referenced by Dr. Lifton in his presentation, but others are simply articles on topics he mentioned. Don’t blame him for any errors in transmission – that would be my doing, probably misunderstanding something he said, since I’m not a geneticist. I hope that the overview this provides of the lecture might be useful to those who were unable to attend in person.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/05/12/the-neel-lecture-hashtags-of-the-week-hotw-week-of-may-12-2014/

Immunization & Vaccination Conversations — Hashtags of the Week (HOTW): (Week of May 5, 2014)

Council for Foreign Relations: Vaccine-Preventable Outbreaks

Last week we highlighted the CDC Grand Rounds on Autism. This week was World Immunization Awareness Week. Do you see a connection? I do. And you can guess what happened. Conversations from pro- and anti-vaccination exploded. Here are some of the hashtags that were used, but FYI, for me I found some of the most coherent and interesting conversations happening under the hashtag #CDCvax. The links below go to archives and metrics for the hashtags listed.

* AntiVax
* AskScotFlu
* CDCvax
* GetVax
* HCSMvac
* Immunization
* Immunizations
* MassVax
* McrFluSafe13
* NFID Clinical Vaccinology Course
* RUuptodate
* Vaccination | Vaccinations
* Vaccines | #Vaccines
* VaccinesWork
* VaxFax

Council for Foreign Relations: Vaccine-Preventable Outbreaks


First posted at THL Blog: http://thlibrary.wordpress.com/2014/05/08/immunization-vaccination-conversations-hashtags-of-the-week-hotw-week-of-may-5-2014/

CDC Grand Rounds on Autism & the DSM5 — Hashtags of the Week (HOTW): (Week of April 28, 2014)

Pic of the day - Puzzles

I had a half page long list of hashtags I was thinking about using for this week. And then I stumbled into the end of the #CDCGrandRounds on autism and the new DSM. I had read about the NIH seeking public comments on the impact of the DSM5 on autism diagnosis. This is because of concerns that the shift in how to diagnosis is resulting in a decrease in diagnoses resulting in people not getting needed services. That derives from the DHHS IACC report: IACC Statement Regarding Scientific, Practice and Policy Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder. That’s pretty intense. So when I saw the CDC was having a Grand Rounds on the topic, live streaming it, with an active Twitter back channel, and then a followup Twitter chat the next day also sponsored by the CDC (#AutismPHGR – Autism Public Health Grand Rounds), well, how very interesting! If you look at WHO was tweeting, it reads like some sort of Who’s Who on the topic. Very interesting indeed. I hope you think so, too.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/04/28/cdc-grand-rounds-on-autism-the-dsm5-hashtags-of-the-week-hotw-week-of-april-14-2014/