Category Archives: Science2.0/Health2.0

The Neel Lecture — Hashtags of the Week (HOTW): (Week of May 12, 2014)

In the HOTW posts (Hashtag of the Week) we usually collect a bunch of tweets to illustrate topics or concepts. There are a few posts that mention Twitter tools, but not a lot. Today I’d like to talk about Storify, and am using the opportunity of having this morning livetweeted the James Neel Lecture by Richard P. Lifton. Livetweeting means to tweet about something while it is going on in real time.

To prepare for livetweeting I open web pages for the event, the speaker, and some of their articles. I make sure there is a good hashtag that isn’t likely to be misunderstood as being for something else. I check to see if it is possible to create an automatic archive of the event tweets. I also usually ask permission, if there is a chance. If there is not a chance to ask, the assumption is that events open to the public are permissible to tweet. (NOTE: If you are organizing an event, remind speakers to tell folk if and when they do NOT want things they say to be tweeted!) In this case, Dr. Lifton granted permission, with the caveat of excluding the portion of the presentation on current unpublished research. When he got to that part, he said, “Please don’t tweet this slide.” It works.

After the event finished, I was able to push all the tweets into a tool called Storify to create a kind of ‘story’ for the event. The tweet at the beginning of this post gives a link to the Storify for this event. While a Storify can be embedded in a web page, just like Youtube videos and tweets, it isn’t something that fits well in this blog, so I encourage you to go look at it there.

As you look at the Storify, you’ll notice that, as is usual with the blogged tweets, the individual tweets will show photos or certain other kinds of content. You may notice other content in addition to the tweets! There are pictures and links included, and even readable scrollable copies of entire article PDFs! Being a really academic presentation, this one was studded with research articles. Some of them are articles referenced by Dr. Lifton in his presentation, but others are simply articles on topics he mentioned. Don’t blame him for any errors in transmission – that would be my doing, probably misunderstanding something he said, since I’m not a geneticist. I hope that the overview this provides of the lecture might be useful to those who were unable to attend in person.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/05/12/the-neel-lecture-hashtags-of-the-week-hotw-week-of-may-12-2014/

Immunization & Vaccination Conversations — Hashtags of the Week (HOTW): (Week of May 5, 2014)

Council for Foreign Relations: Vaccine-Preventable Outbreaks

Last week we highlighted the CDC Grand Rounds on Autism. This week was World Immunization Awareness Week. Do you see a connection? I do. And you can guess what happened. Conversations from pro- and anti-vaccination exploded. Here are some of the hashtags that were used, but FYI, for me I found some of the most coherent and interesting conversations happening under the hashtag #CDCvax. The links below go to archives and metrics for the hashtags listed.

* AntiVax
* AskScotFlu
* CDCvax
* GetVax
* HCSMvac
* Immunization
* Immunizations
* MassVax
* McrFluSafe13
* NFID Clinical Vaccinology Course
* RUuptodate
* Vaccination | Vaccinations
* Vaccines | #Vaccines
* VaccinesWork
* VaxFax

Council for Foreign Relations: Vaccine-Preventable Outbreaks


First posted at THL Blog: http://thlibrary.wordpress.com/2014/05/08/immunization-vaccination-conversations-hashtags-of-the-week-hotw-week-of-may-5-2014/

CDC Grand Rounds on Autism & the DSM5 — Hashtags of the Week (HOTW): (Week of April 28, 2014)

Pic of the day - Puzzles

I had a half page long list of hashtags I was thinking about using for this week. And then I stumbled into the end of the #CDCGrandRounds on autism and the new DSM. I had read about the NIH seeking public comments on the impact of the DSM5 on autism diagnosis. This is because of concerns that the shift in how to diagnosis is resulting in a decrease in diagnoses resulting in people not getting needed services. That derives from the DHHS IACC report: IACC Statement Regarding Scientific, Practice and Policy Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder. That’s pretty intense. So when I saw the CDC was having a Grand Rounds on the topic, live streaming it, with an active Twitter back channel, and then a followup Twitter chat the next day also sponsored by the CDC (#AutismPHGR – Autism Public Health Grand Rounds), well, how very interesting! If you look at WHO was tweeting, it reads like some sort of Who’s Who on the topic. Very interesting indeed. I hope you think so, too.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/04/28/cdc-grand-rounds-on-autism-the-dsm5-hashtags-of-the-week-hotw-week-of-april-14-2014/

Preparedness — Hashtags of the Week (HOTW): (Week of April 7, 2014)

SL - Wolverine: UMMS Elective, Play2Train

It seems like now every week has so many incredible conversations going on that it is hard to choose a topic for these weekly posts. This week I was saved by the synchronicity of two separate tags with similar themes. The annual Preparedness Summit conference was going on (#PS14), and then the weekly medical librarians chat (#medlibs) also focused on disaster preparedness. So, there you go, that’s today’s topic!

The Preparedness Summit focused on the profession, trends, new research, etc. The medical librarians chat, to my surprise, focused less on libraries and more on practical personal sharing of what’s most important to remember for personal safety in various types of disaster scenarios. Both were useful and information. Here are highlights from both hashtags. There are even overlapping tweets, with both hashtags!


First posted at THL Blog: http://thlibrary.wordpress.com/2014/04/07/preparedness-hashtags-of-the-week-hotw-week-of-april-7-2014/

Beyond “Light it Up Blue” — Maybe “Light it up Gold”!

UN: World Autism Awareness Day

Today is World Autism Awareness Day, a permanent observance created by the United Nations. Monday, Anna Schnitzer and I attended a presentation on campus by Elizabeth J. “Ibby” Grace on the rhetoric of autism activism. You can find notes, pictures, and livetweets from the event in this Storify.

Autistic Activism in an Age of the Blues: https://storify.com/pfanderson/autistic-activism-in-an-age-of-the-blues/

In the event, part of what we learned was that the Light It Up Blue campaign for autism awareness, which presents itself upon first glance as if they are representing the UN in this, is actually a corporate project sponsored by the controversial organization Autism Speaks.

Autism Speaks: Light It Up Blue

Autism Speaks does fund a great deal of interesting research, so I’m not going to touch on why they are considered so controversial (at least not in this post!). It was interesting to learn more from Ibby Grace about other ways to celebrate World Autism Awareness Day and support autism acceptance and the ASD community. Here are some she mentioned. Tone it Down Taupe seemed to be her favorite, but since we are UM, I figured if we aren’t going blue, maybe gold is another good choice! There are also a few others that appeared while I was searching.

WAAD: Tone it down taupe

Tone It Down Taupe (for Autism Acceptance): http://toneitdowntaupe.tumblr.com/
TIDT on Facebook: https://www.facebook.com/pages/Tone-it-Down-Taupe/446945788708219

WAAD: Light it up Gold

Light it up Gold (from AU for Autistic Union): https://www.facebook.com/groups/Goldforautism/

WAAD: Light it up Red

Light It Up Red: http://autismthroughoureyes.org/LightItUpRed/
Facebook: https://www.facebook.com/events/664431953623778/

There are so MANY images of the ribbon with the puzzle or the rainbow puzzle ribbon, that I can’t possibly point to them all. Here is one from Wikipedia.

Autism Awareness Ribbon

Meanwhile, Ibby Grace had a great point about diversity and acceptance in considering the question of autism awareness and acceptance.

Rainbows!!


First posted at THL Blog: http://wp.me/p1v84h-1US

On My Radar: “Reverse Innovation”

Ethnic Box

“Reverse Innovation” is a concept that came across my horizon a few months ago, and for which I immediately went into high alert. This is important. I want to push today’s Twitter chat on this topic, so I’m going to keep this post very short, and hope to come back to this more soon.

Briefly, then. What first brought this to my attention was a blogpost at Biomed Central which was closely followed by an article in Smart Planet.

Reverse Innovation in Global Health Systems: Building the Global Knowledge Pool http://blogs.biomedcentral.com/bmcblog/2013/04/12/reverse-innovation-in-global-health-systems-building-the-global-knowledge-pool/

Dehydration cure from developing countries comes to U.S. hospitals http://www.smartplanet.com/blog/bulletin/dehydration-cure-from-developing-countries-comes-to-us-hospitals/27991

The basic idea of “reverse innovation” is this, as expressed through my ill-informed novice point of view. The past century or two have largely seen scitech and research and cultural innovation flow from the first world countries to the third world countries. This has resulted in unrealistic expectations and unsustainable processes which are making life harder for all of us, everywhere across the planet. In the interests of increased sustainability and the desire to create innovation that will integrate more efficiently with the broader systems of the planet, the idea is that problem-solving partnerships between first world and third world researchers can result in innovations that are both effective and sustainable, with the innovations flowing from the third world countries to the first world, thus reversing what has been the recent pattern.

You can discover more information about reverse innovation through these resources.

JOURNAL:
Globalization and health: http://www.globalizationandhealth.com/

KEY ARTICLE:
Developed-developing country partnerships: Benefits to developed countries? http://www.globalizationandhealth.com/content/8/1/17

SOUNDBITE:

“Developing countries can generate effective solutions for today’s global health challenges.”

SPECIAL ISSUE / ARTICLE COLLECTION:
Reverse innovation in global health systems: learning from low-income countries http://www.globalizationandhealth.com/series/reverse_innovations

HASHTAGS:
– Primary
#revsinv
#reverseinnovation
– Other
#revinno
#revinnov
#innoverse

The Future of Genomic Medicine #FOGM14 — Hashtags of the Week (HOTW): (Week of March 21, 2014)

Lantern Slides: Heritance of Clefting

The image above is from one of the earliest studies on the genetics of clefting done here at the University of Michigan School of Dentistry. Those were the days, weren’t they? You had to track signs and symptoms across generations, for decades, trying to deduce large scale patterns. Now we spit in a tube and mail it off.

Pic of the Day - PGen

The Future of Genomic Medicine was just happening. It was being actively tweeted by a number of leading figures in healthcare and science — Eric Topol, Carl Zimmer, Dr. Khoury from the CDC, Magdalene Skipper from Nature, and (uh) Al Gore, just for starters. It was so active that the original hashtag, #FOGM14, had to be dropped because of spammers, and they group switched to #FOGM2014. It was so active that even though it happened two weeks ago, the hashtags are still active on Twitter with people continuing the conversations around the conference. Here are just a highly selected few tweets with interesting thoughts, resources, and take-aways from this important conference.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/03/24/the-future-of-genomic-medicine-fogm14-hashtags-of-the-week-hotw-week-of-march-21-2014/

Sleeeeeep — Hashtags of the Week (HOTW): (Week of March 17, 2014)

Z's: Sleep Test Rendering

I bet everyone noticed the Spring time change to Daylight Savings last week. So I bet you really understand the logic of why Sleep Awareness Week is that same week! Sleep Awareness Week is both about the importance of sleep for health, what are good practices for “sleep hygiene,” as well as awareness about various sleep disorders in order to help people recognize these in themselves and be more sensitive to those who have them. The image at the beginning of this post is representative of some of the sleep disorders in my own family (a picture of my son, drawn by my daughter), so this is a topic near and dear to my heart in many ways.

The main hashtag for Sleep Awareness Week was #sleepweek, but they did a clever thing by combining it with various other conditions, usually (but not always) focused on a day of that week, to keep the theme going. Did you know there is an Insomnia Day? Yeah, for everyone! Interesting. Some of the other conditions highlighted included narcolepsy, cataplexy, sleep apnea, and others. There was also a lot of information about parenting and self-tracking for sleep, so much interesting information for “sleep literacy.”

#SleepWeek

SLEEP HEALTHY & SAFE

PARENTING AND SLEEP

SLEEP TRACKING & QUANTIFIED SELF

SLEEP DISORDER

SLEEP APNEA

INSOMNIA

NARCOLEPSY

CATAPLEXY & SLEEP PARALYSIS


First posted at THL Blog: http://thlibrary.wordpress.com/2014/03/17/sleeeeeep-hashtags-of-the-week-hotw-week-of-march-17-2014/

Crazy Quilt — Hashtags of the Week (HOTW): (Week of March 10, 2014)

Pic of the day - How Big Is This Sea? (SciMaps Paper Quilt, In Progress 0 - Single Piece

This was one of those weeks where there were SO MANY hashtags supporting incredible conversations that I truly cannot choose just one. Included in this post are:

#CultureOfHealth
#FP2020Progress
#GatesSocial
#IWD2014
#TEDxMan
#EBNJC
#RWJF1stFri
#PatientChat
#MedX
#HCLDR
#HCSM

#CultureOfHealth

The Robert Wood Johnson Foundation recently released a new initiative called “Culture Of Health“, complete with hashtag, video, “six word stories,” and more. The campaign has expanded beyond the original vision for it.

#FP2020Progress

The Family Planning Partnership, associated with the United Nations, has a goal of reaching 120 million more women with information to support reproductive healthcare decisionmaking. They are also using #FP2020 and #AskFP2020 to help spread awareness, information, and open dialog.

#GatesSocial

The Gates Foundation had an event in support of International Women’s Day which focused on family planning, reproductive equity and resources.

#IWD2014

Of course, then there was also the official International Women’s Day activities and hashtag.

#TEDxMan

I really really wanted to do a whole post on TEDxManhattan, which every year focuses on sustainable food and best nutrition practices.

#EBNJC

The EBNJC conversation last week was also completely worth an entire post. This chat was based on a BMJ blogpost by Marie Ennis-O’Connor, “How Online Patient Communities are Changing the Face of Cancer Care.” The chat took this topic and refocused it through the lens of evidence-based nursing.

#RWJF1stFri

The Robert Wood Johnson Foundation has a monthly “First Friday” Twitter chat, with last week’s topic being how to “flip the clinic,” parallel to the concept of flipped classrooms. The basic concept is the doctor as guide in support of personalized medicine and decisionmaking, with the responsibility for good health and good choices going to the patient. I may have oversimplified, but do please read the chat. They also used the hashtags #FliptheClinic and created midstream #FliptheWaitingRoom.

#PatientChat

Flipping the clinic was also a topic of conversation at the weekly patient chat.

#MedX

AND flipped clinic, patient engagement, and quantified self were also at the MedX hangout and Twitter chat.

#HCLDR

The Healthcare Leaders Twitter chat connected patient engagement with health literacy.

#HCSM

Last but not least comes the fabulous conversation in last night’s HCSM Twitter chat about the new nutrition labels, and how they intersect with both health literacy and design thinking in healthcare.

“And I said, ‘Yeah, man. Totally!’”: The Obamacare Vloggers


NicePeterToo: I Met the President: https://www.youtube.com/watch?v=vEcxXDWqs-A

You really should watch the video embedded above. Last week, President Obama invited several of the young folk with exceptionally active Youtube channels to come visit and talk with him about ideas for how to really use Youtube effectively to get out information about the Affordable Care Act. Now, I say “young folk” from my perspective as an admitted old fogie who remembers life before the Internet existed. I mean, really, before punch card programming. OLD fogie!

Anyway, we spend a lot of time in in various online healthcare communities talking about the power of social media for outreach. We all know that Obama works with masters in using social media effectively, and I’ve blogged about that here many times ([1], [2], [3], [4], [5], [6], [7]). Well, he’s done it again!

Last week, President Obama invited a variety of influential Youtube voices to the White House, asking them to help him reach the American youth to enroll in health insurance programs before the March 31st deadline.

Montage: The Obamacare Vloggers

“Attending the meeting were Hannah Hart, creator of the Drunk Kitchen series; Iman Crosson, an Obama impersonator known online as Alphacat; Michael Stephens, the man behind the YouTube channel “VSauce;” Benny and Rafi Fine, creators of the “Kids React” series; Mark Douglas, Todd Womack, and Ben Relles, who introduced the world to Obama Girl six years ago; Peter Shuckoff and Lloyd Ahlquist of “Epic Rap Battles of History” and Tyler Oakley, an LGBT rights advocate with millions of online fans.”
Obama Enlisted YouTube Personalities For Final Health Care Enrollment Push Last Week: The president asked viral video creators to help boost Obamacare enrollment ahead of the March 31 deadline at a White House summit last week. http://www.buzzfeed.com/evanmcsan/obama-enlisted-youtube-personalities-for-final-health-care-e

Another brilliant use of social media. My kid regularly watches about half of these, which means so do I (and, as an aside, you REALLY might enjoy the new “Kids React to Rotary Phones” which made me ROFL. Really. And made my kid ask me if I know what a rotary phone is. Really). That’s what the introductory video is for this post — famous vlogger NicePeter introducing the topic of why and how he met the President, in real people language, and promising more to come. I can’t wait to see what he says, and the other vloggers! Nice Peter looks to be the first of the group to get a video out, but some of them have added this link to existing videos.

Tell a Friend: Get Covered
Tell a Friend: Get Covered: http://www.tellafriendgetcovered.com

Now, WHY Obama is doing this is the million dollar question. Literally. Well, at least that much, probably a lot more. You see, the logic behind pretty much all health insurance plans is that you have LOT of people in the plan, of all ages and all types of health, and then the need for resources will average out over the groups. So to make this work, you need young folk and old, healthy and not-so-healthy. If that doesn’t happen, well, the whole system breaks down, or costs everyone more money than was expected. The way my budget works, those two things amount to pretty much the same problem.

“He needs them to buy health insurance, and, in some cases, spend hundreds of dollars a month for it. If they don’t, the new insurance marketplaces — the absolute core of Obamacare — will be filled with older, sicker people, and premiums will skyrocket. And if that happens, the law will fail.” Obama’s last campaign: Inside the White House plan to sell Obamacare:
http://www.washingtonpost.com/blogs/wonkblog/wp/2013/07/17/obamas-last-campaign-inside-the-white-house-plan-to-sell-obamacare/

You’ve probably already figured out that there must be a problem getting young folk to register for Obamacare. Well, it’s true. Sort of. There is a genuine need for more young folk to enroll, but the data about what’s going on is both worrisome and hopeful. Look at the title of this piece.

Bruce Japsen. Less Than A Third Of Enrollees In Obamacare Under Age 34. Forbes 1/13/2014 @ 5:23PM. http://www.forbes.com/sites/brucejapsen/2014/01/13/less-than-one-third-of-obamacare-enrollees-are-under-34/

That is based on enrollment data from the government, and if you read the article, it’s actually fairly positive about youth liking Obamacare and just waiting to enroll because, you know, they’re young, and that’s ‘how they roll.’ Here’s last quarter’s enrollment data.

Figure 2: Trends in the Number of Youth Who Have Selected an Obamacare Plan

During December, there was a more than 8-fold increase in the number of young adults (ages 18-34) who have selected a Marketplace plan through the FFM.


ASPE: Health Insurance Marketplace: January Enrollment Report: For the period: October 1, 2013 – December 28, 2013: http://aspe.hhs.gov/health/reports/2014/MarketPlaceEnrollment/Jan2014/ib_2014jan_enrollment.pdf

The next logical question might be, well, why is he doing this so late? Didn’t the Obama team think of reaching out to youth before it got so late? Actually, they’ve been reaching out for quite a while. I’ll post several examples below. The gist of this late push is that even though the numbers are rising, and the expectation was that youth would probably register late, there have been some unfortunate snafus (such as the web page being down on the day of the biggest push for youth enrollment) and that the expected lateness makes for a bit of nervousness and a desire to ensure that the idea of “registering late” doesn’t end up meaning, “Oops! I forgot!” After all, there are consequences to forgetting, both for the youth as individuals and for the good of the entire program.

OBAMA REACHING OUT TO YOUTH

Obama pitches Affordable Care Act to youth at White House Published on Dec 4, 2013

Obamacare: What if not enough young, healthy people enroll? (+video)
The 18-to-34-year-old cohort is the most coveted for the exchanges, and should be about one-third of enrollees, though there are backstops if enrollment falls short.
By Linda Feldmann, Staff writer / December 5, 2013
http://www.csmonitor.com/USA/DC-Decoder/2013/1205/Obamacare-What-if-not-enough-young-healthy-people-enroll-video

Evan McMorris-Santoro. Youth Obamacare Enrollment Groups Surprised To Learn Obamacare Website Won’t Work On National Youth Enrollment Day: “Obviously, it’s unfortunate,” says one youth enrollment leader. The Obama administration is giving applicants who save applications on Feb. 15 extra time to work around downtime on the site. Buzzfeed posted on February 12, 2014 at 3:13pm EST. http://www.buzzfeed.com/evanmcsan/youth-obamacare-enrollment-groups-surprised-to-learn-obamaca

David Morgan. Obamacare enrollment push for the young enters 11th hour. Reuters Fri Feb 14, 2014 1:02am EST
http://www.reuters.com/article/2014/02/14/us-usa-healthcare-enrollment-idUSBREA1D06X20140214

Adam Aigner-Treworgy and Jim Acosta. Obamacare enrollment hits 4 million, push underway to hit revised goal. CNN February 25th, 2014 08:48 PM ET, Updated 8:48 p.m. ET, 2/25/2014. http://politicalticker.blogs.cnn.com/2014/02/25/obamacare-enrollment-hits-4-million-push-underway-to-hit-revised-goal/

Get Covered (with NBA Star Kevin Johnson) http://www.youtube.com/watch?v=vndF-I4Cq5k