Category Archives: Science2.0/Health2.0

Using Twitter to Counteract Hype (#Ebola) – Hashtags of the Week (HOTW): (Week of August 4, 2014)

Ebola virionsEbola virus particles
From Wikimedia Commons: Ebola virions; Ebola virus particles

In the last week, I don’t think there has been a moment when the trending hashtags display on my Twitter page has NOT listed “Ebola.” This is in part due to the attention resulting from two American healthcare providers having been infected with the Ebola virus while providing care, and partly also from the newest update from WHO on the outbreak in West Africa, which lists over 1500 cases and almost 900 deaths. People are panicking, and the press is going wild. This is a great opportunity to show how healthcare professionals and the broader healthcare Twitter community is using the #Ebola hashtag to help alleviate concerns and moderate anxiety, by providing informed balanced reliable information. Each of the tweets included in this post is considered a popular tweet which has already been retweeted several times and/or favorited by people reading the tweet. If you want to help calm things down, you might consider retweeting or sharing some of these popular tweets on the topic.

lores Ebola Zaire CDC Photo
From Wikimedia Commons: Ebola case #3, 1976

Reposted from THL Blog:

FDA On Social Media: Time to Pay Attention, Take Two

FDASM Campus Forum Feb 16SL: Virtual Ability: Introduction to the FDASM
FDASM Transcripts Wordle23andMe, reduced

Remember five or so years ago when we put together a campus event about the FDA call for input on social media guidance? I blogged about it a lot. I’m sure many of you are already aware of the new FDA Social Media draft guidelines that were, at long last, released last month.

Recently I heard an interview with David Harlow about the new draft guidelines. I was very surprised when I heard him say that the FDA sent a warning letter to a company for clicking “like” on a patient’s Facebook post. That seemed a bit over the top to me, although I confess I haven’t yet found the original warning letter. I had been inclined to just trust that after thinking about this so long, the FDA would come out with something helpful, but it sounds like that isn’t what happened. Responses from the drug companies seem to be along the lines of just avoiding the whole problem, if the FDA is going to be so challenging and confrontational. Responses from folk working actively in HCSM are that the FDA is not getting the point or purpose of social media engagement, and that the guidelines are sufficiently restrictive as to make it impossible to adhere to the specifications.

I know that I need to know more about this, and I believe that readers of this blog do also. The period for public comment is over in September, so there is very little time to respond. My fault — I should have paid closer attention to this sooner.


For context, I’d like to first remind people of the comments we filed with the FDA during the original call for comments. Where it sounds like things have broken down is with respect to our third point (#3): “the potential to be perceived as interfering with free speech of the public or creating an undue and insupportable burden for industry and the healthcare communities,” and to the concerns about use of social media within an educational framework.

FDA-2009-N-0441 Docket Comments, University of Michigan Public Forum:

Here are my slides from five years ago, just to provide context for the background of the conversation.

FDA Social Media Guidelines – Introduction

Now, here are some links about where things stand today, plus the presentation by David Harlow, which I encourage you to watch.


FDA Social Media Changes that May Affect Healthcare

#FDAsm – FDA Releases Draft Social Media Guidance Five Years After Public Hearing

FDA Social Media Guidance – Hangout on Air


2009: Public Hearing on Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools:

July 10, 2014: Social Media Guidance Webinar – July 10, 2014:


FDA Issues Draft Guidances for Industry on Social Media and Internet Communications About Medical Products: Designed with Patients in Mind

Draft Guidance for Industry on Internet/Social Media Platforms: Correcting Independent Third-Party Misinformation About Prescription Drugs and Medical Devices; Availability

NOTE: This is where to file comments >>
[Docket No. FDA-2014-D-0447] Draft Guidance for Industry on Internet/Social Media Platforms: Correcting Independent Third-Party Misinformation About Prescription Drugs and Medical Devices; Availability


Guidance for Industry: Internet/Social Media Platforms with Character Space Limitations— Presenting Risk and Benefit Information for Prescription Drugs and Medical Devices (June 2014)

Guidance for Industry : Internet/Social Media Platforms: Correcting Independent Third-Party Misinformation About Prescription Drugs and Medical Devices

Guidance for Industry: Fulfilling Regulatory Requirements for Postmarketing Submissions of Interactive Promotional Media for Prescription Human and Animal Drugs and Biologics (Jan 2014)

Learn about Making, 1: Going on NOW! [#makehealth]

First posted at @HealthByUs

Maker learning events NOW

Maybe you’re not in Washington, New York City, or San Francisco. Maybe you’re not in Chattanooga, Pittsburgh, or Boston. Maybe you’re not even in Ann Arbor! But you want to know more, you want to do more, and you want find other people to do things with you, to share learning and making and troubleshooting. We’re going to do a series of blogposts on exactly that, on topics like videos, online classes, maker communities, online spaces, books and blogs. To get you started we’re highlighting three special events going on right now, just as examples: MakerCamp & Tinkering Course & the Google Science Fair.

MakerCamp ScreenshotsMakerCamp Screenshots
MakerCamp ScreenshotsMakerCamp Screenshots


The annual Maker Camp is a several week even each summer, while kids are out of school. Officially, it is designed to engage kids and have activities at an appropriate level, but, I can tell you, a lot of what they do is just as challenging and fun for adults as for kids. Each week has a different theme, and here’s the line up for this year, followed by links to more information and an example video of them showing folk how to DIY safety features for your bicycles.

Week 1: Makers in Motion
Week 2: Art & Design
Week 3: Fun & Games
Week 4: Science & Technology
Week 5: DIY Music
Week 6: Make: Believe

Maker Camp:
MakerFaire: Maker Camp 2014:
G+: Make Media: MakerCamp:
G+: Communities: Maker Camp:

MakerCamp: Beautiful 3D Printing:

Tinkering Studio & FundamentalsTinkering Studio & FundamentalsTinkering Studio & Fundamentals
Tinkering Studio & FundamentalsTinkering Studio & FundamentalsTinkering Studio & Fundamentals
Tinkering Studio & FundamentalsTinkering Studio & FundamentalsTinkering Studio & Fundamentals


I cannot tell you how excited I was when I saw this MOOC (an online class) was coming from Coursera and the Tinkering Studio folk! Unfortunately for me, the class is going on at exactly the same time that we are swamped with planning our own MakeHealth event. I hope that they offer it again!

A MOOC is a Massively Open Online Course, usually from teachers famous for the topic. In this case, the Tinkering Studio is part of the famous Exploratorium, one of the most recognized museums based on the hands-on science learning approach. Even though I can’t do what’s needed for the assignments in the class, I am lurking in the hangouts and watching as many videos as I can fit in. They’ve done a phenomenal job of integrating social media, which you will notice from the links below. They are also asking the students to use social media to turn in their homework, posting videos of the robots of light shows and photos of objects. Here is the very high level overview of their course content, followed by links and an example video from one of the hangouts.

Week One: Introduction to Tinkering
Week Two: Initial Explorations
Week Three: Learning Dimensions
Week Four: Tinkering Tenets and Personal Expression
Week Five: Coding, Computation and Facilitation Strategies
Week Six: Putting It All Together

Tinkering Fundamentals: A Constructionist Approach to STEM Learning
Exploratorium: Tinkering Studio:
Art of Tinkering (book):
G+: The Tinkering Studio:
Facebook: Tinkering Studio:
Twitter: Tinkering Studio:
Instagram: Tinkering Studio:
Youtube: Tinkering Studio:

Week Four Hangout On Air: Tinkering Fundamentals:

Google Science FairGoogle Science FairGoogle Science Fair
Google Science FairGoogle Science FairGoogle Science Fair
Google Science FairGoogle Science FairGoogle Science Fair


We’ve had a camp, a course, and now a science fair! Google Science Fair (GSF or #GSF2014) is actually something kids work on all year. The main event is coming up early in August, and is usually live-streamed. This is less about learning how to make things, and more of an inspiration to see what kids are doing with science and technology. For us, of course, part of the real excitement is seeing how kids are doing research to support health and learning about health. Here are some of the topics being highlighted at this year’s GSF.

* Acidic pH determines if Cryptococcus neoformans can survive in the environment and within the host
* Haptic feedback e-reader for the visually impaired
* The Synthesis of oleic acid core silica nano particles for the safe delivery of enzymes
* Improving Raloxifene’s affinity with er-Beta through synergy with S-Equol as a novel chemopreventive treatment

… and SO MANY MORE! Several on assistive technology, technology risk, ecology, sustainability, bullying, solar power, bacteriology, stroke management, stem cells, etcetera. In this case, you really have to question what “etcetera” might mean! Again, they are doing an exceptional job of integrating social media, taking things to the next level with an active hashtag, and including a rather sleepy looking blog. Here are some links, and an example video.

Google Science Fair:
Youtube: Google Science Fair:
Facebook: Google Science Fair:
Twitter: Google Science Fair:
Twitter: #GSF2014:
Google Science Fair Blog:
G+: Google Science Fair:

Isn’t this just too cool?

Google Science Fair Example Project (Detroit): Caloric Content of Zoo Animal Food:

Google Science Fair Project (Detroit): Caloric Intake of Zoo Animal Food:


Just because it was too cool not to share. Storytelling has become absolutely integral in healthcare because of its power for health literacy and inspiring both community and individual behavior change. In this video, the Maker Camp leaders take a tour of Cartoon Network and the folks behind the very bizarre and popular show Adventure Time, showing the steps behind the process of telling the stories. This goes from concept, to storyboarding, to backgrounds, character design, voicing, and more.

Maker Camp: Cartoon Network Field Trip!:

Pubmed is LIVE on Social Media – Hashtags of the Week (HOTW): (Week of July 21, 2014)

Pubmed Social Media Icons
PubMed Update: Social Media Icons Added. NLM Tech Bull. 2014 Jul-Aug;(399):b2.

Have you been straddling the fence deciding whether or not social media is “a thing” in healthcare? Well, maybe this will tip the balance. Pubmed now includes social media sharing icons at the article level, as shown in the image above. This is in addition to NIH’s own active life on social media. Unfortunately, when I was testing it out, every now and then what it shared was not the link to the article, but a link to the search strategy from which I found the articles. Hopefully, they’ll get that fixed, but usually it was good. Here’s what it looks like when sharing something to Twitter.

Pubmed Social Media Sharing Example: Twitter

In honor of this noteworthy change, I thought I’d divert from actual hashtags to seeing what people are sharing from Pubmed this week. If you really want hashtags, take a look at what hashtags they are ADDING to the posts, since Pubmed doesn’t automatically add any.

First posted at THL Blog:

Trust & Health Information in Social Media – Hashtags of the Week (HOTW): (Week of July 14, 2014)

BBC Radio4: Reith Lectures 2002: Onora O'Neill, Trust

The question of trust is not a new one — who we trust, how we trust, why we trust. All of these are known to be critical in healthcare, even more so now that we have the Internet and social media. In last’s evening’s #HCSM Twitter chat, a group of patients and doctors debated portions of this question. No new answers or solutions appeared, but there were some provocative statements and perspectives.

First posted at THL Blog:

Fatigue in Healthcare – Hashtags of the Week (HOTW): (Week of July 7, 2014)

Asleep in the Library

Each week the Healthcare Leaders chat (#HCLDR) is fabulous, covering relevant fascinating topics of great interest to me. I can’t highlight them every week, but I am often tempted to do so. This one was huge — how do we manage fatigue when it impacts on doctors, nurses, residents, students?

First posted at THL Blog:

Keeping Patients in the Dark – Hashtags of the Week (HOTW): (Week of June 30, 2014)

The legal and ethical implications of KEEPING PATIENTS IN THE DARK
Summer Institute for Informed Patient Choice: The legal and ethical implications of keeping patients in the dark:

You shape your Twitter experience through who you choose to follow. Everything else derives from this — the tweets you see, the suggestions for people to follow, the hashtags listed as trending, all of it. For me, by far the majority of the people I follow are somehow connected to healthcare. Last week the hashtag that was vibrating through my Twitter feed was #SIIP14, which turned out to be for a biannual event on patient choice held at Dartmouth College. From what I was seeing, it sure looked as if they had some exceptional speakers and great conversations. There was also ONE particular tweet and slide that seemed to sum up the most important thoughts of the conference, on how to tell the difference between “informed consent” and “shared decision making.” Trust me, if the image doesn’t show up in the embedded tweet below, you really need to click through and see this one.

The discussion centered around that one tweet was rather insightful, especially with respect to how “informed consent” may be perceived by actual patients. Here are just a few selections (excluding some of the strong language that accompanied people’s passionate responses).

That side conversation is, however, only part of the exceptional thoughts that circulated through #SIIPC14. Historic context, overdiagnosis, the child’s view of the doctor, unwanted surgeries, access to information and research articles, respecting the accommodation needs of patients who attend healthcare events (and when is the doctor a patient?), with much more.

Note – in this image, the doctor is the one with their back to the rest of the room, typing away furiously on the computer.





First posted at THL Blog:

Make Health Fest Coming August 16!

Detroit Maker Faire 2013#UMSIMakerfest !!!Ann Arbor Mini Maker Faire 2013
Ann Arbor Mini Maker Faire 2013Ann Arbor Mini Maker Faire 2014Detroit Maker Faire 2013
Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2013

We Make Health Fest
Saturday, Aug 16th, 2014
University of Michigan
Palmer Commons, Great Lakes Rooms

Short Description
“A collaborative event for a local and virtual community interested in health, technology, and participatory design. Join us for a full day of health themed design and maker activities!”

Longer Description
Many types of events are being triggered by the creativity of the Maker Movement — maker faires, mini-maker faires, maker camps, maker festivals, maker fests and makerfests, make-a-thons and createathons (also spelled makeathon or makethon), open make events, maker madness events, maker shows — and they come in all sizes, flavors, and themes. What does that mean? Think of it as a mash-up of science fair PLUS Hands On Museum or Exploratorium PLUS do it yourself! It’s all about learning and creating and problemsolving through a combination of Show+Tell+Do! Here at the University of Michigan, many people on campus are partnering on taking the “maker culture” energy and applying it through a lens focused on health to promote participatory and collaborative strategies in healthcare. Come, have fun, learn, make stuff, but more than that, meet other interesting and creative people who are interested in using what they have, know, and can do to Make Health!

Learn More!

Make Health:
Twitter: @MakeHealthUM
Google Plus: Make Health UM

A project of HealthDesignBy.Us
Twitter: @HealthByUs
Blog: Introducing @HealthByUs

We Make Health

First posted at THL Blog:

Beginning to Make Health [#makehealth]

Cool Toys Pic of the Day - Maker Movement Meets Healthcare
Cool Toys Pic of the Day – Maker Movement Meets Healthcare

In the blog series “Health Fair Meet Maker Faire” (parts one, two, and three), I was talking about the exciting idea of looking at commonalities between the maker movement and the shifting landscape of patient engagement in healthcare.

We went wild with brainstorming and excitement. I’ll share more of the ideas we developed here in the next post on #makehealth. (Oh, #makehealth is our hashtag. Feel free to use it, and we’ll be tracking it.) At that time, no one had done a health-themed Maker Faire, but what we didn’t know was that there were some others in the works. After all, as we had noticed, it seemed like a really obvious idea! Evidently so. We did immediately notice the collection of health-themed maker events collected by Make Media.

Maker Faire: Health:

I took the just the first page of their entries and looked at the subject headings used for those to get an idea of the topics being tied into health makering.

3D Printing
Art & Design
DIY Projects
Fun & Games
Getting Started
Hands On
Kids & Family
Maker < 18yo.
Open Source Hardware
Raspberry Pi
Start Up
Young Makers

Pretty cool list, isn't it? Really, you should go explore their collection. For me, the coolest one to find was the post about MakerNurse.

Makers in the Nursing Unit: Lessons Learned from America’s Amazing MakerNurses:

Whoa! What great stuff!

RWJF: Seeking DIY Nurses – New MakerNurse Initiative Launches

The MakerNurse group partnered with Maimonides Medical Center to have the VERY FIRST health-themed maker faire!

A Hospital Mini-Maker Faire:

Facebook: Maimonides Medical Mini Maker Faire:

Now, pause for a moment, and think, “What would YOU want to see in a health Maker Faire?” Here are just a few posts and tweets about what MakerNurse has been up to. Have any more ideas?

Makers in the Nursing Unit: Lessons Learned from America’s Amazing MakerNurses – Jose Gomez-Marquez




MakerNurse: The Stealth Ingenuity of Inventive Nurses in America

ONC Partners with Dr. Oz to Spread the Word (#BlueButton) — Hashtags of the Week (HOTW): (Week of June 16, 2014)

BlueButton on Twitter

The Blue Button was some of the biggest buzz at Health Data Palooza. Following #hdpalooza, the Office of the National Coordinator for Health Information Technology partnered with the famous and popular media personality, Dr. Oz through his affiliated service, ShareCare, to co-sponsor a Twitter chat about the Blue Button and what it can do for the American people. For those who haven’t already heard, the Blue Button is a tool for accessing your personal health records.

I’m taking this opportunity to also show you some special Twitter search features and how they work. Today, I’ll cluster the examples by type of search, and in Part 2, I’ll show how to do these special searches.






First posted at THL Blog: