Category Archives: Workshops & Presentations

MedX, and TEDMED, and the Inauguration, Oh, MY!!

MedX, UM Inaugural Symposia, TEDMED

Last week I was privileged to listen in on a press conference for the upcoming TEDMED. Tomorrow is the Symposia for the Inauguration of UM’s new President, Mark S. Schlissel, with Harold Varmus as a guest speaker! Later tomorrow and this weekend, I’ll be watching Stanford’s Medicine X (#MedX) through their Global Access program. Next week the UM Medical School will be hosting a viewing of TEDMED. I feel like I’m swimming in an intellectual biomedical broth!


President Schlissel Inauguration Symposia with Harold Varmus

Inaugural Symposia: Sustaining the Biomedical Research Enterprise and Privacy and Identity in a Hyperconnected Society

HASHTAG: #UMPres14
LIVESTREAM (1): http://umich.edu/watch/
LIVESTREAM (2): http://www.mgoblue.com/collegesportslive/?media=461850

The Inaugural Symposia for President Schissel’s investiture (8:30am ET to 12:00 noon ET) are composed of two very interesting topics and even more interesting collections of speakers. The first part, “Sustaining the Biomedical Research Enterprise,” is the section including the famous Harold Varmus, but also five other notable researchers from on campus, experts in chemistry, genetics/genomics, neuroscience, statistics, and biomedical imaging. (I’m excited that three of the five have expertise related to genomics!)

The focus of the first symposia centers around a recent article from Varmus and colleagues entitled, “Rescuing US biomedical research from its systemic flaws.

The provocative abstract states:

“The long-held but erroneous assumption of never-ending rapid growth in biomedical science has created an unsustainable hypercompetitive system that is discouraging even the most outstanding prospective students from entering our profession—and making it difficult for seasoned investigators to produce their best work. This is a recipe for long-term decline, and the problems cannot be solved with simplistic approaches. Instead, it is time to confront the dangers at hand and rethink some fundamental features of the US biomedical research ecosystem.”

Those three ‘simple’ sentences imply an enormity of challenges which impact both locally and globally. I guarantee it will be fascinating to hear this panel discuss these and brainstorm ways in which the University of Michigan might work towards addressing them here.


Stanford Medicine X

Stanford Medicine X 2014

HASHTAG: #MedX
LIVESTREAM: Available with pre-registration through the MedX Global Access program: http://medicinex.stanford.edu/2014-global-access-program/.

Lucky for me, the Stanford Medicine X event is on the other coast, so our local event will be almost completed when they begin livestreaming at 8AM PT (11AM ET). However, Medicine X conference lasts a solid three days, and includes topics from self-tracking to self-awareness, from entrepreneurship to partnership in design, from compassion to PCORI, from pain to clinical trials to games. It’s intense. A lot of my friends will be there, too many to name, but they include doctors, patients, geeks, and more. MedX is a powerful diverse community, and this is an exciting event.

Schedule: http://medicinex.stanford.edu/2014-schedule/


TEDMED 2014

TEDMED 2014

HASHTAGS: #TEDMED; #TEDMEDlive; #TEDMEDhive; #GreatChallenges.
LIVESTREAMING OPTIONS: http://www.tedmed.com/event/tedmedlive

TEDMED is a little different from the other two events in that it isn’t sponsored through higher education and the livestream isn’t usually free. For folk here in Ann Arbor, there is a way to watch it on campus. What you’ll see if you come includes very little that is expected. Even when someone has a job description that might sound like regular healthcare folk, what they are talking about will probably be a surprise. Beyond the idea of doctor, patient, nurse or neuroscientist, you will also hear comedians, musicians, athletes, bioethicists, military, philosophers, inventors, and more. But what else would you expect, when the theme of the event is “Unlocking Imagination”?

The TEDMED event is a little more complicated than in prior years because they are having presenters and events on both coasts — in Washington DC and in San Francisco. Some parts will overlap. Other parts won’t. You can check out the schedules for both coasts here.

Washington DC Stage Schedule (pdf)

San Francisco CA Stage Schedule (pdf)

To watch locally, details are given below.

Watch the Live Stream of TEDMED Conference, September 10-12

The Medical School will host a live stream from the TEDMED conference, which takes place September 10-12 in Washington DC and San Francisco. The focus of this year’s program is “Unlocking Imagination in Service of Health and Medicine.” Presenters include some of the most respected and undiscovered names in science, journalism, education, business, and technology. Click here to see the conference schedule. Viewing times and locations for watching the live streams are:

Wednesday, September 10: 8am-5pm: University Hospital South (Old Mott) 8th floor lounge
Thursday, September 11: 8am-12pm, 1pm-5pm: University Hospital South (Old Mott) 8th floor lounge
Friday, September 12: 8am-11:30am: University Hospital South (Old Mott) 8409 Conference Room
Friday, September 12: 11:30am-5pm: University Hospital South (Old Mott) 8419 IDTT Collaboration Space

Hero Tales at We #MakeHealth Fest

Reblogged from Health Design By Us



Make Health: Personal Genomics Hero Story http://www.slideshare.net/perplexity/make-health-personal-genomics-hero-story

I was given the honor of closing remarks at the We Make Health Fest, and was pretty nervous about it frankly. I was supposed to do something on personal genomics along with the closing remarks. The very idea made me feel dizzy. I thought about it a lot for weeks without having any ideas I felt good about. One of the ideas was to make the whole thing a poem. Then I thought haiku for each section of the talk. Then I started outlining the talk and realized it sounded kind of like the Joseph Campbell’s hero’s journey, the whole Hero With a Thousand Faces idea. Last summer I was also taking the Coursera MOOC on Fantasy and Science Fiction in which we talked a lot about Propp’s functions of folktales. With all that, I got the idea to tell about personal genomics in my life as a kind of folk tale, and to talk about that experience as a representative process. That was the idea that struck roughly 24 hours before the event started. Oh.

As it turned out, there were so MANY heroes at the We Make Health Fest. So many of them had stories that contained a heroic challenge, a guide, a journey, a transformation, a rescue or solution. This was true from the very first presentation, with Joyce Lee and her son, talking about how they used Youtube to help teach schools how to keep him safe, and how the family worked together to make a large cardboard person to explain their warnings signs. Jane Berliss-Vincent described how an iPad saved a man’s life when he’d given up the will to live. Gary Olthoff made a device that was born out of long visits at hospital bedsides and seeing how nurses struggled with the mattresses. Duane Mackey overcame challenge after challenge in an engrossing story of the process that has culminated in his Open Source Mosquito Trap. The long journey to the stair-climbing wheelchair started young, in early school years, and became a mission. Mike Lee talked about how open teaching and learning resources can change lives in 3rd world countries. Marc Stephens literally transformed his own body through the use quantified self and wearable technology (and more!). Michael Flynn practically juggled the skateboard he was waving around, advocating for new opportunities for physical activities, while the McNaughton-Younger team brought their kids up on stage to help teach challenging concepts of diagnostic tools in surprisingly simple ways. Lia Min told a powerful story of being lost in a grocery story when young, and how sensory challenges can make that a much more confusing and frightening experience, then turning the story and the understanding into a tale for others, through her comic book.

Of course, our keynote speakers were both incredible, and heroes in their own right. Jose Gomez-Marquez explained how medical devices from first world countries fail in 3rd world countries, hidden costs with hidden agendas, and how simple tools and strategies can empower us all. John Costik really reached out and touched the hearts of the audience with his story of his child’s diagnosis with diabetes, how this radically changed their lives, the appearance of experts and guides who helped him along the road to creating the tools that are helping them all feel safer, and being used by so many others.

MakeHealthMontage

It wasn’t just the speakers who were heroes! In the exhibit hall, I was so thrilled to see people from e-NABLE with example Robohands, the open source prosthetic for those who may not be able to afford one. Other 3D printing experts at the event included All Hands Active, Maker Works, and the UM 3D Lab. Brian Zikmund-Fisher demonstrated tools that help people make sense of those confusing and mysterious numbers in research to help people make informed decisions through real understanding. Nanci Nanney lobbied for safe kitchens and restaurants for those with food allergies. Solus created a solution to help people with missing limbs be both more mobile and more comfortable.

We MakeHealth FESTWe MakeHealth FEST

That is just a small, very small, sampling of the heroes who were helping to make health, and who we were privileged to have at our inaugural We #MakeHealth Fest. Over coming weeks we will gradually bring out some of the videos (but it might take a while!). We will try to tell more of the stories, and introduce more of the people. If you were there, think about sharing a blogpost or tweet about what meant the most to you from the We #MakeHealth Fest.

Designing Health, Making Health

Reblogged from Health Design By Us.

Health Design By Use

You may have noticed that the We Make Health Fest is sponsored by the Health Design By Us collaborative, of which Joyce Lee is the PI and I am a team member. So what is the connection, at least for us, between health design and making health? A good topic for the final post before the big event. For me, personally, my awareness of the intimate role of design in health began with doorknobs.

Doorknobs and Door Handles

Well, actually it came in the 80s when I was lucky enough to attend a presentation by Don Norman. (Yes, THAT Don Norman.) In the presentation I saw Don described what he called “The Pyschology of Everyday Things (POET).” I would have loved the talk for the name alone, but there was so much more. One of the first things Don did was to put up a whole series of slides of pictures of doorknobs and door handles, then talk about how the door tells us we should open it. He pointed out doors that don’t tell us, or confuse us; doors which seem to say ‘push’ when you need to pull and ‘pull’ when you ought to push. He showed us doors that can only be opened with two hands, with one hand, doors that want you to be righthanded or lefthanded, doors that can’t be opened at all if you are in a wheelchair, and then he showed us doors designed so well that you can open them without hands at all.

When you look at the intersection of the maker movement and healthcare, a great deal of the creativity is focused on solving problems like doorknobs. Problems that began with design that didn’t go as far as it might to include the people actually using whatever it is. With the maker movement, people might say, “Dagnabbit, why didn’t they make it THIS way?!” And then they remake it the way it should have been made in the first place. Or, if they can’t remake it themselves, they look for someone who can. Just last week

Patients think about things like this. A lot! And parents of kids. And the public.

Joyce thinks about things like this, too. (It’s part of what I love about working with her — her insight, caring, enthusiasm, excitement, energy, and her fabulous sense of humor.)

What it really takes, though, is partnerships, collaborations, people talking to other people, people who know that other people are out there interested and working on the same challenges. When Joyce has one of her design thinking workshops with a group of people, she’s encouraging them to think about the topic together, to imagine a better world, to work in teams, to leverage the insights and knowledge of one with the skills and talents of another (and then to switch places, so everyone is using insights and talents!).

Tim Brown says “design thinking” is a combination of what’s desirable, viable, and feasible. Reuven Cohen gives several overviews in Forbes, of which one says it is intelligence gathering, design, and choice, while another says the process stages are: Empathize, Define, Ideate, Prototype, Test. Wikipedia says “design thinking” is a combination of empathy, creativity, and rationality.

I like that so many of those definitions are rooted in empathy. Makers and inventors are excited by interesting problems. (So are researchers, of course.) In healthcare, there is an infinity of interesting problems. But it isn’t just about interesting problems, it’s about caring and need, that’s what starts people working on a problem. Given two equally interesting problems, the one with the greatest need, and the greatest need for heart, is the one that will get the most excitement.

In the maker community, a lot of what helps move things along is also about sharing, working together, sharing ideas and problems, digging around to find a solution. It is invention through flow (rather than by committee). When makers get together to work on a project they also brainstorm and share insights and ideas and resources. Then they go back to the drawing board until they get stuck. The ideas move from person to person, flowing around challenges (lack of resources, lack of skills) much like water flows around rocks in a stream.

Sometimes the flow moves from the person with the idea to someone with the expertise. A lot of the time, it isn’t that simple, and it flows back and forth. Having the idea is itself a kind of expertise. If we want real innovation in healthcare, we need more perspectives, more voices, more sources of imagination and creativity, skillsets that perhaps have not been traditionally valued in healthcare settings. And we have to listen, try to understand what the ideas are, where they are coming from.

With the We Make Health Fest, we’re hoping those different perspectives, voices, views, will meet, and discover each other. And then, maybe, just maybe, some of them will start something new.

“The call to care suggests a possible primary design position. … We might start from the assumption that, as designers, we do not know (yet) how the values of care are being lived and acted upon. We must interpret without (yet) being expert.” Jones PH. Design for care: innovating healthcare experience. Brooklyn, NY: Rosenfeld Media, (c)2013, p.xviii. https://rosenfeldmedia.com/books/design-for-care/

Maybe none of us are experts. Maybe all of us are experts. Maybe the kinds of expertise that will change healthcare the ways that are most needed are kinds of expertise we don’t even know how to recognize yet. But this is how we start finding out.


This was the last post before the big event on Saturday! Come to the We Make Health Fest on August 16th, 2014 in Palmer Commons at the University of Michigan or follow hashtag #makehealth on Twitter! Please follow @MakeHealthUM and @healthbyus on Twitter and please sign up for our mailing list so that you can join and contribute!

“There’s Magic Everywhere”: The #MakeHealth Exhibitors

Reposted from Health Design By Us

We Make Health Fest (University of Michigan)

The exhibits for the We Make Health Fest are visual, active, hands-on. We are hoping the exhibitors will show you how to do things yourself, discuss tips, tricks, strategies. So, for this blogpost, to try to replicate that sense of physical engagement in a virtual environment, the information about the exhibitors isn’t in a list studded with occasional pictures. Nope, it’s almost all pictures, in a slideshow you can click through yourself, at your own pace. Take a look, browse, think about which ones you want most to visit. And enjoy!

Who Is Making Health Here? #makehealth

Reposted from Health Design By Us: Who is Making Health Here? #makehealth; Find out about the health-makers you’ll meet on Saturday!


We Make Health Fest (University of Michigan)

When we started planning this, more than once Joyce told me, “Hey, I’ll be happy if five people show up.” Well, we did a lot of talking, had a lot of meetings, asked people to spread the word, and … the resulting response has been beyond our WILDEST dreams! Since this is our first time, we wanted to keep this as open as possible, and create as many opportunities for people to be involved as we could. Exhibitors are timesharing booths and tables. Speakers are doing mostly pecha kucha style 5-minute presentations. We didn’t want to say “no” to anyone! So if you say you’re a maker and wanted to be involved, we did our darnedest to try to fit you in somewhere. So who all will you find if you come? Here’s how you find out.

On our website: http://makehealth.us/

Direct link to the full speaker and exhibitor schedule as a downloadable PDF: http://bit.ly/MakeHealthFestSpeakers

We also are in the process of adding the schedule into Lanyrd.

Lanyrd: We Make Health Fest: Schedule

Lanyrd has an app, if you want to use it during the event.

Lanyrd apps: Android | iPhone | Mobile Web | Open Web

Or you can simply read on!

SPEAKERS

10:30am Joyce Lee / Welcome
10:35am Jose Gomez-Marquez / Keynote
11:05am John Costik / Keynote: Hacking Diabetes
11:35am Andrew Maynard / Color My Poop Beautiful, and Other Tales of Tech Derring Do
11:55 Makers the Movie
1:05pm Matt Christensen / Linnetic: A Better Way to Monitor Asthma
1:10pm Nanci and Eilah Nanney / GREAT Gluten-Free Kitchens!
1:15pm Marc Stephens / Tech-Savvy Fitness
1:25pm Jane Berliss-Vincent / The iPad as Resuscitation Device: Notes on Assistive Tech in the Hospital Environment
1:35pm Linda Diane Feldt / There is a Free Lunch: Wildcrafting and Foraging for Food and Medicine
1:45pm Kris Kullgren / Mott Kids4Kids: Utilizing Peer Education Videos at Bedside and Beyond
1:55pm Amer Abughaida / A Manual Stair-Climbing Wheelchair
2:00pm Duane Mackey / Open Source Mosquito Trap
2:05pm Brandon McNaughton / Kitchen-Table Diagnostics with Glass Microbubbles
2:10pm James Rampton / Learning Health System – Consumer Application
2:20pm Irene Knokh / Free Educational Resources: MERLOT and beyond!
2:25pm Mike Lee / Demonstration of World Possible’s Remote Areas Community Hotspots for Education and Learning (RACHEL) Project
2:35pm Sandy Merkel / The Poke Program
2:45pm Harpreet Singh / Communication Box: Flip the Health Care Culture by T.R.U.M.P. Technique
2:55pm Michael Flynn / Fostering a sense of community in hospital lobbies with interactive public art
3:00pm Gary Olthoff / EZCarryBed Mattress Carrier Handle
3:05pm George Albercook / DIY Hearing Aids – A Model MakeHealth
3:15pm Pete Wendel / Games and User Interface Design: Thinking Differently to Affect Elderly Quality of Life
3:25pm Lia Min / In My Spectrum: A Comic about Autism Desktop
3:35pm Shawn O’Grady / 3D Printing and Rapid Prototyping
3:40pm George Albercook / Makers Answer the Call
3:45pm AJ Montpetit / Disrupting Health Care
3:55pm PF Anderson / Personalized Genomics and Closing Remarks

EXHIBITORS

10am – 12pm
IconArray.com: A Free Generator of Health Risk Graphics
Linnetic: A Better Way to Monitor Asthma
Type 1 Diabetes

10am – 1pm
Building Capacity for the Ann Arbor Sharing Economy
National Foundation for Celiac Awareness — GREAT Kitchens!
We Make Health Stories

10am – 2pm
Cardboard Challenge: #makehealth
Kitchen-Table Diagnostics with Glass Microbubbles

10am – 3pm
The Poke Program

11am – 12pm
Free Educational Resources: MERLOT and Beyond

12pm – 2pm
A Manual Stair-Climbing Wheelchair
Demonstration of World Possible’s Remote Areas Community Hotspots for Education and Learning (RACHEL) Project
Hacking Diabetes
Learning Health System – Consumer Application

1pm – 4pm
Michigan Engineered for All Libes (M-HEAL)

2pm – 4pm
Open Source Mosquito Trap

Make Health Fest Coming August 16!

Detroit Maker Faire 2013#UMSIMakerfest !!!Ann Arbor Mini Maker Faire 2013
Ann Arbor Mini Maker Faire 2013Ann Arbor Mini Maker Faire 2014Detroit Maker Faire 2013
Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2013

We Make Health Fest
Saturday, Aug 16th, 2014
University of Michigan
Palmer Commons, Great Lakes Rooms

Short Description
“A collaborative event for a local and virtual community interested in health, technology, and participatory design. Join us for a full day of health themed design and maker activities!”

Longer Description
Many types of events are being triggered by the creativity of the Maker Movement — maker faires, mini-maker faires, maker camps, maker festivals, maker fests and makerfests, make-a-thons and createathons (also spelled makeathon or makethon), open make events, maker madness events, maker shows — and they come in all sizes, flavors, and themes. What does that mean? Think of it as a mash-up of science fair PLUS Hands On Museum or Exploratorium PLUS do it yourself! It’s all about learning and creating and problemsolving through a combination of Show+Tell+Do! Here at the University of Michigan, many people on campus are partnering on taking the “maker culture” energy and applying it through a lens focused on health to promote participatory and collaborative strategies in healthcare. Come, have fun, learn, make stuff, but more than that, meet other interesting and creative people who are interested in using what they have, know, and can do to Make Health!

Learn More!

Make Health: http://makehealth.us/
Twitter: @MakeHealthUM
Google Plus: Make Health UM

A project of HealthDesignBy.Us
Twitter: @HealthByUs
Blog: Introducing @HealthByUs

We Make Health


First posted at THL Blog: http://thlibrary.wordpress.com/2014/06/25/make-health-fest-coming-august-16/

Health Fair Meet Maker Faire! Part 3: Our Announcement!!

You saw Part One, in which the idea was born, and Part Two, in which the concept was tested and proven. So what actually happened? We’re doing it. We’re really DOING IT! By “it” I mean a health-themed maker faire/fest at the University of Michigan. REALLY!

WHAT:

We Make Health
We Make Health: http://makehealth.us

Emily Puckett Rogers had given us a heads-up about requirements for working with the official Maker Faire folk, which I had not realized was an actual brand name. So we don’t yet know if this is going to be a Mini-Maker Faire or a Maker Fest or what, but it is definitely happening!

Please note that the We Make Health event is a project of Health Design By Us, a participatory behavior change project funded as part of the UM Provost’s Third Century Initiative. It’s a completely awesome and wonderful collaboration, and you’ll be hearing more about it if you read this blog regularly.

WHEN:

Saturday, August 16, 2014

We are still settling on what happens when during the day. We are brainstorming roughly 10am to 6pm, but that may change.

WHERE:

Google Map for Palmer Commons
Palmer Commons: https://www.google.com/maps/place/100+Washtenaw+Ave/@42.2807486,-83.7335814,17z/data=!3m1!4b1!4m2!3m1!1s0x883cae4266554837:0x732dcfa6f8fb7dbe

WHO:

Joyce Lee, Doctor as DesignerPF Anderson, Self Portrait as ShadowMatt Kenyon, Artist

Us! We!

Well, Joyce Lee, Matt Kenyon, and I are taking point on planning the project (with the capable assistance of Emily Hirschfeld). Joyce is from the UM Medical School and Mott Children’s Hospital, Matt is with the School of Art and Design, and I, of course, am part of the University Libraries, Taubman Health Sciences Library. However, we have an email list for folk interested in the event which currently has over 90 people signed up. Many of them have contributed ideas, suggested contacts, volunteered to do booths or presentations, and so forth. We are reaching out to many community maker communities, and have received endorsements from several of them. You’ll hear more about our partners as the event moves closer.

CONTACTS:

1) Sign up at the We Make Health web site to receive information and updates from the Health Design By Us project.

2) If you are part of the University of Michigan, you can sign up through M-Community for the MakeHealthUM email list.

3) If you want to contact the event coordinators, our Make Health Team, you can reach us at: MAKEHEALTH at-sign UMICH dot EDU.

4) Twitter! The event itself is on twitter, as is Health Design By Us.

Make Health: @MakeHealthUM
Health Design By Us: @HealthByUs

If you want to chat with Joyce or me individually, we are also pretty easily reached through Twitter:

Joyce: @joyclee
Patricia: @pfanderson

5) Please feel free to comment on this post! We will have a blog for the actual event, but that’s still being set up. More soon!

WHAT’S NEXT:

What’s coming next is more blogposts and more news! We will highlight some of the technologies and people that will be highlighted at our event, the partners we’re working with, and exciting spinoff projects to help the energy last beyond the actual event. We’ll tell you more about some of the other folk working on health maker events, and other maker communities around the University and the Ann Arbor community.