I bet you all thought I was being quiet because I was on vacation or holiday or something like that. Wrong! I spent an unbelievable amount of time over the past couple weeks working on my portion of an article a few of us are submitting about Nursing education in Second Life. My portion of it was intended to be a quick overview of emerging technologies and virtual worlds as used in education (generally), healthcare, and nursing. I think I might have a whole article of its own coming out of this, but, wow, did I find a lot of fascinating things while I was doing the background research for this. I will try to find time to share some of the highlights here over the next few weeks, just short little pieces with things I’ve found.

For today, here is something I found before the nursing article binge, and which I meant to share ages ago. I could spend weeks just talking about the concepts and ideas in this one slideshow, and still feel hopelessly inadequate. Briefly, this is from Cisco, almost a sales pitch but framed in the context of a vision of the impending future of computing systems. Think big fluffy clouds, lots of them, all interconnected. Instead of the InterNet, or the InterWeb, or the “InterTubes”, you get the InterCloud. You won’t really think of your data as having a particular space anymore, not like, “Oh, my stuff lives in that cluster of servers on North Campus.” And I remember the days when people on campus would ask which server you lived on, UB, or UM or MERIT. At Northwestern the servers were named after local popular student restaurants, and my account lived on Casbah. Nope, not anymore. Hope you enjoy it!

This video should be required viewing for doctors, nurses, healthcare students, healthcare consumers, patient advocates, pharma industry, librarians, IT experts (especially healthIT), health reform activists, government … need I go on? EVERYONE!

Briefly, ePatient Dave Bronkart (known as @epatientdave on Twitter) here talks about how technology, social computing, personal health data, pharma corporation websites, web searches, Google Health, Google Docs, mashups and more all contributed to his being alive and able to talk to us today, and the impact of these for the future and participatory medicine.

The Quantified Patient: http://vimeo.com/8411312

The Quantified Patient from e-Patient Dave deBronkart on Vimeo.

Last August I worked on the Enterprise Social Media series, which continues more slowly, and recently I’ve been working largely on the FDASM series about new policy guideline development there. I recently stumbled on a couple resources I wanted to share with you here, and which relate to both of these main topics.

The Social Media Governance site has a LOT of things relevant to the whole Enterprise 2.0 topic. Worth exploring in general, but if you are doing either implementation or administration of any social media initiative, you MUST check out the Policy Database. This collects social media policies and guidelines from various organizations, and groups them by type of industry. Absolutely essential reading. The Healthcare section (shown here) has a collection of types of social media guidelines already being used in different places, from clinical environments to academia to insurance to pharma. It absolutely should be reviewed by anyone involved in the FDASM process.

Social Media Governance: Policy Database: http://socialmediagovernance. com/policies.php?f=4

On a related note, the whole question of the balance between transparency and privacy in social media is core to all of our lives these days. Here are two very useful taxonomies also relevant to the policy development process, and which could be applied to determining levels of privacy for different types of information and audiences in healthcare (as well as others).

Taxonomy of Social Networking and Privacy: http://www.schneier.com/blog/archives/2009/11/a_taxonomy_of_s.html
(via CIS Cyberlaw at Stanford)

Mechanical Poetry: Another Categorization of Social Networking Data: http://mechpoe.blogspot.com/2009/11/another-categorization-of-social.html

I’ve been concerned about the archived videos of the FDASM webcast disappearing this week. I’ve heard from so many people that they don’t have time to watch them, and that it is too hard to find the interesting parts in the two eight-hour chunks of video currently available. Perhaps the transcripts will be a little more accessible? It is still a thousand pages of content, but perhaps easier to skim. The transcripts can be downloaded here (bottom of the page):

Public Hearing on Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools: http://www.fda.gov/AboutFDA/CentersOffices/CDER/ucm184250.htm

In the meantime, here is a Wordle visualization of the most frequently repeated terms from the transcripts. Click through for higher resolution versions.

Since this discussion has come up about how the FDA might regulate conversation within social media, I’ve been talking about it to everyone who stands still briefly. Basically, I think this is IMPORTANT.

So when I was asked to talk about FDASM in Second Life to an international group of health care consumers, educators and advocates, I said, “When? This weekend?”

There was a great discussion there, which will take me a little time to pull together, so that will come in a few days, I hope.

I figured anything I put together for them would be useful for other groups as well, so put the slides in Slideshare and here, thinking they might be useful for background in preparing for our campus forum on the FDASM the last week of January. More info on that coming soon, but in the meantime, here are the slides.

This isn’t new. It was at least a year, year and a half ago when I attended a wonderful presentation by our very own Jacob Glenn on the subject of semantic technologies (a.k.a. “Web 3.0″) and how they could be used in libraries. I particularly glommed onto the idea of microformats, which seemed immensely useful to me, for many many purposes.

Unfortunately, Jacob didn’t feel he could put his slides in Slideshare, which meant I couldn’t easily reshare his content with you. He still hasn’t, at least not where I can find them, so I was happy to find these presentations on semantic technologies and trends in libraries. From my point of view, the real power is similar to augmented reality, in that the strengths and power of the libraries are embedded throughout their surrounding environments, both analog and virtual.

This presentation is wonderful, engaging, well-designed, worth downloading, and be sure to take a look at his other presentations on the same topic.

This one is more technical and has a good bibliography

The Semantic Web and Libraries in the United States: Experimentation and Achievements: http://www.slideshare.net/elephantsmith/the-semantic-web-and-libraries-in-the-united-states-experimentation-and-achievements

More information:

Semantic Digital Libraries (Book): http://semdl.corrib.org/Book/Welcome.html
NOTE: Check out the “Interesting Links” section.

Semantic Library (Blog): http://www.semanticlibrary.net/

Semantic Library (Wiki): http://semanticlibrary.pbworks.com/Learning+Program

The FDA had a Public Forum on November 12-13 to collect suggestions for their forthcoming social media and online presence guidelines. I’ve been hoping for people to watch the FDASM Public Forum videos with me, but it hasn’t happened yet. Part of the problem is the way the FDA has made them available.

What they did:
– Two links.
– 8 hours of video each.

What I wish they’d done:
– 60 speakers.
– 9 minutes each.
– each individual presentation in YouTube and Vimeo.

A few presenters downloaded the entire video (each link takes 8 hours to download) and then snipped out their section and posted it online. You can understand why not everyone has done this. (What a pain!)

I started collecting these (gee, I’m SUCH a librarian sometimes), and we’re in conversations trying to get permissions to help those who did not post theirs in YouTube to do so.

This playlist collects some of the presentations and interviews that surrounded this event.

FDASM Playlist: http://www.youtube.com/user/perplexitypeccable#g/c/C1A3ED9EF1F5BB8E

The FDA guidelines will very likely shape non-health guidelines for social media and may very well impact on health communications in broader spheres, especially that of information professionals, health advocates, and potentially the general public. Please see http://fdasm.com for more information on how you can contribute to the dialog.

WordPress won’t allow me to embed the playlist here, so I have done so at the Health Sciences Libraries blog. You can browse the list at YouTube or just start watching at the other blog.

Yesterday I attended the University of Michigan Communicators Forum, having requested and received permission to livetweet in advance. A couple of us did so, and you will see a few quirky or extraneous comments from the general public as well.

The meeting included some updates for campus communicators as well as some discussions and brief presentations from the social media working groups. These are the notes from the meeting, being archived here. The coding for the table was cribbed from What The Hashtag, which is a tool I highly recommend.

December 8, 2009
7:18 am	crheinga:	I'm at the U-M communicators' forum learning about how U-M uses social media, etc.should be interesting! @UM_SPH @UMSocialWork #commforum
7:28 am	pfanderson:	Several of us will be livetweeting this morning the Communicator's Forum discussion on social media #commforum
7:40 am	pfanderson:	Met @crheinga @ the #commforum. @mindofandre, wd like to introduce you. She's into #globalhealth #publichealth #socialwork
8:01 am	pfanderson:	#commforum starting. David Lampe, Lee Doyle, Steve Schramm, social media reports, Gateway tweaks, new sites BUDGET as emerging issue
8:01 am	pfanderson:	Detroit as a national symbol for all that's wrong with the economy #commforum
8:02 am	crheinga:	the communicators' forum just started - updates on U-M big picture things. U-M is doing well compared to other institutions #commforum
8:02 am	pfanderson:	Wow - cut $135million in past 6 yrs. More to come. People are concerns, marshalling communications. Hackett Survey #commforum
8:03 am	crheinga:	David Lampe talking about the Hackets survey which assesses costs at our university #commforum
8:04 am	pfanderson:	Voice of the staff town hall coming. #commforum Tutorials on funding concepts, like endowment. Prior tutorial went to @whitehouse
8:06 am	ocdgirl2000:	RT @pfanderson: #commforum starting. David Lampe, Lee Doyle, Steve Schramm, social media reports, Gateway tweaks, new sites BUDGET as em ...
8:07 am	pfanderson:	Future tutorials on tuition & costcutting #commforum Athletics issues, sports press "going wild". Avg time for NCAA investigation 22months
8:08 am	crheinga:	"the president [of U-M] stands behind the coach [Rich Rodriguez]" - just wanted to make it clear #commforum
8:08 am	pfanderson:	"The President (UM) stands behind the coach!" (3x) Evidently folks are not hearing this, reporters keep asking. #commforum
8:10 am	pfanderson:	Integrating the arts into all campus activities as a significant trend. Crossdisciplinary collaboration as ed trend #commforum ArtsOnEarth
8:11 am	pfanderson:	Integrating arts and art making into other disciplines to inspire creativity across all domains. #commforum http://artsonearth.umich.edu/
8:11 am	crheinga:	Arts on Earth starting to gather steam at U-M http://artsonearth.umich.edu/ to learn more! #commforum
8:12 am	pfanderson:	Film office, lots of movies being filmed on campus. New one: Trust. New backlot is North Campus Research Center #commforum
8:13 am	pfanderson:	Fake National Enquirer cover on screen, "UM Scandal" Big Joke, everyone is laughing. #commforum Humor at a work meeting, goodness!
8:13 am	crheinga:	Lee Doyle speaking about U-M's presence in the new Michigan film industry #commforum
8:18 am	crheinga:	U-M block "M" should have a registration mark by it because it adds a little bit of protection. U-M will now be doing this. #commforum
8:18 am	pfanderson:	Review of Wordmark/logo policies and recommendations. http://facebook.com/universityofmichigan?ref=ts #commforum #umich
8:18 am	crheinga:	new registration mark logos will be available soon here: http://www.logos.umich.edu/ #commforum
8:19 am	pfanderson:	Steve Schramm talking about Out of the Blue http://www.bigtennetwork.com/showcase/michigan.asp #commforum highlight campus innovation
8:20 am	crheinga:	"Out of the Blue" program on Big Ten Network, Steve Schram #commforum http://si.umich.edu/video/hofer.html highlights cool U-M things
8:20 am	snarkyUmich:	lord save us from propagandists blathering about Detroit, economics, and "innovation" #commforum
8:22 am	pfanderson:	Out of the Blue also at UM YouTube, iTunesU http://www.ootb.tv #commforum embeds available
8:22 am	crheinga:	better website: http://ootb.tv/ can also get the vids on U-M YouTube channel, U-M iTunesU channel, & Michigan Channel in AA (22) #commforum
8:23 am	pfanderson:	@snarkyUmich LOL! Well, number of folk couldn't come to meeting, but wanted to participate. Thus tweeting on their behalf. #commforum
8:25 am	crheinga:	seeking ideas for future Out of the Blue stories - send to the OOTB ppl http://ootb.tv #commforum
8:26 am	pfanderson:	Planning an entire show on Green issues at UM, incl Planet Blue #commforum OOTB reaches ~40mil households. Want more stories
8:27 am	crheinga:	May-Sept the Out of the Blue shows will get more play cuz they won't compete with money-making sports shows #commforum
8:27 am	crheinga:	can order hard copy DVDs through U-M production #commforum #OOTB
8:28 am	pfanderson:	Oooh, QT downlaods, CD purchase. We cd push these to SL audience on Wolverine. #commforum
8:35 am	crheinga:	students presenting on how marketing ppl at U-M can use the @MichiganDaily for communication #commforum
8:36 am	crheinga:	students actually do value print still 77% cite the Daily as primary news source, 90% students read it 3x/wk #commforum
8:36 am	crheinga:	the @michigandaily is currently Ann Arbor's only daily print newspaper #commforum
8:37 am	pfanderson:	Update on Michigan Daily advertising. Students value print. 18K copies reach 40K fac/stdts. 90% rd 3x/wk #commforum A2s ONLY prt daily paper
8:38 am	crheinga:	U-M's @michigandaily is one of most online college papers in world, ppl read from 165 countries and stay avg of 3 mins each #commforum
8:38 am	pfanderson:	MDaily 163,000 visitors online, 165 countries. One of most popular online college newspapers. Online rdrs tend to be older >35yrs #commforum
8:40 am	pfanderson:	Recommend using @michigandaily online to reach alumni/parents, geo-diverse audiences. #commforum They did nice job Applause
8:42 am	WashtenawNews:	RT @pfanderson: Recommend using @michigandaily online to reach alumni/parents, geo-diverse audiences. #commforum They did nice job Ap ...
8:43 am	crheinga:	online daily Record update has extra stuff from print version & vice versa #commforum http://www.ur.umich.edu
8:44 am	pfanderson:	Hearing fr University Record. http://www.ur.umich.edu/ Noting Record Update is *diff*. Adding social media, rss, coming Jan 1 #commforum
8:47 am	crheinga:	the Record Update is going to be searchable soon! #commforum
8:47 am	pfanderson:	Oh, goodie! They figured out they want the news backlog to be searchable. #commforum
8:47 am	crheinga:	now getting into social media part of the #commforum Global Language Monitor ranked U-M #1 in social media, internet and media
8:48 am	crheinga:	largest # Twitter accounts of any university #commforum (follow mine list here: @crheinga/umich)
8:48 am	pfanderson:	Global Language Monitor ranked UM #1 in social media, internet & media interest. Most # of accts4 Twitter. Revived Facebook page. #commforum
8:49 am	crheinga:	U-M facebook fan page has over 68K fans! #commforum http://www.facebook.com/universityofmichigan?ref=search&sid=2205466.1061267416..1
8:50 am	pfanderson:	"Bad thing is you can't control the conversation." I didn't say it folks, just quoting. #commforum Looking at comments on FB page.
8:53 am	pfanderson:	RT @crheinga largest # Twitter accounts of any university #commforum (follow mine list here: @crheinga/umich) @pfanderson/umich-annarbor
8:53 am	crheinga:	talking about U-M YouTube channel http://www.youtube.com/user/um #commforum (also Spanish channel & @PortalEnEspanol)
8:55 am	crheinga:	U-M Spanish YouTube channel http://www.youtube.com/user/UMinSpanish #commforum
8:57 am	pfanderson:	Social media discussion starting. Video group 1st. Talking abt videos that work, and why. Fun+Human element+Surprise = success #commforum
8:58 am	pfanderson:	Short, fast paced, visual impact, emotional = new UM video #commforum HD, 3days of video to make 1 minute video. Lot of work.
9:01 am	pfanderson:	Tech, history, innovation, cool = UM solar car video #commforum dedicated alumni, parents, people w/ passion 4 topic
9:02 am	crheinga:	U-M solar car video and others showing how to showcase U-M students, faculty work #commforum
9:04 am	pfanderson:	Fun, energy, cool factor = um north campus Explorth. Michigan Moments. #commforum #video They're talking abt how to make videos for YT
9:07 am	crheinga:	presentation from @pfanderson abt social media tech and trends (& sorry abt the comp cord - my battery only lasts 20 mins) #commforum
9:07 am	crheinga:	"analog" presentation = writing notes on <gasp> paper! with NO powerpoint! #commforum
9:08 am	crheinga:	found most commonly used sites 4social media at UM. YouTube 4vid, flickr 4pics, twitter 4microblogging, slideshare 4presenations #commforum
9:09 am	crheinga:	more abt blogging coming up w/blogging committee. trying to find new social media guidelines, FDA creating some #commforum
9:14 am	crheinga:	discussion abt monitoring conversations, esp in health area. U-M highly values free speech but does not tolerate hate speech #commforum
9:14 am	crheinga:	Laura from blogging team presenting on blogging. why should we even blog if already so many? #commforum
9:15 am	crheinga:	project-oriented short-term, or topic-oriented long-term. short example: http://solarcar.engin.umich.edu/blog/ #commforum
9:17 am	crheinga:	highlighted a few blogs- all look different. want to brand the blogs. want to update mblog to be more user friendly #commforum
9:17 am	pfanderson:	Matt Adams abt Trends & Tech process & recommended tools. Me on #fdasm importance 4 non-health communicators #commforum
9:18 am	crheinga:	blogs are easier to update with fresh content daily than clunkier websites and easier to format #commforum
9:18 am	pfanderson:	Blogging team talking about use of blogs for interactive communication & facebook. Blogs seem to endure as mode of communication #commforum
9:20 am	crheinga:	FDA social media guidelines disc RT @fdasm FDASM Update: Transcripts from hearings now available on www.fdasm.com. #fdasm #commforum
9:20 am	crheinga:	question about intellectual property on blogs - could U-M affiliation/branding deter ppl from blogging? #commforum
9:21 am	crheinga:	example: www.juancole.com Prof Juan Cole is very international presence but works at U-M. not U-M branded but would be good rep #commforum
9:23 am	pfanderson:	@crheinga It doesn't work to make one tool fit all voices. #commforum Dynamic audience conversation on how to brand UM blogs/authors
9:24 am	pfanderson:	Good suggestion - register UM-authored blogs in DB or discovery tool #commforum
9:26 am	crheinga:	why have a social media forum at which you can't use social media? #commforum
9:26 am	pfanderson:	New: UM Speaks Out section on gateway. Gateway being overhauled for freshness. #commforum Crisis Communication. One source is DPS website
9:27 am	pfanderson:	In 1st hr of campus crisis situation go to http://police.umich.edu, not to gateway, not to library, go to DPS/Police. #commforum

Here are even more resources for people exploring the FDA’s engagement with social media and the conversation around what guidelines we want to see come from this. The previous blogpost mentioned a few, but not the core ones that are shaping the whole discussion. These are the core places where your attention should focus.

The most important one-stop shop. Please note this excellent site aggregates much of the actual discussion about this via social media, and is unaffiliated with the FDA who (near as I can tell) did not utilitize social media to either promote the discussion or engage in it. In my humble opinion, they could have taken some lessons from another government unit, the Smithsonian, who did a brilliant job of engaging the public in planning their engagement with social media.

FDASM: http://www.fdasm.com/

Google spreadsheet from the same folk (yay, Fabio!), collecting information and resources about the FDASM process, contributions, links, slides, and much more.

FDASM: https://spreadsheets.google.com/ccc?key=0Ape8GYHoQ7q7dFZZdUFNUW5FVUY5YjBnMWNMSDZadkE&hl=en

This isn’t the first thing to do, but it is the most important. Either as individuals or in groups, place comments in the docket at Regulations.gov. Please note, this is:

Docket No. FDA-2009-N-0441: http://www.regulations.gov/search/Regs/home.html#searchResults?Ne=11+8+8053+8098+8074+8066+8084+1&N=0

Slideshare.net: FDASM Slide collection.

Public Hearing on Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools. http://www.slideshare.net/group/public-hearing-on-promotion-of-fdaregulated-medical-products-using-the-internet-and-social-media-tools

Twitter: FDASM: http://www.twitter.com/fdasm

Survey to gather data to information the process (from John Mack). Please fill it in.

What Happens Now? Questions About FDA’s Process for Creating Social Media Guidance: http://www.surveymonkey.com/s.aspx?sm=Ynyjv33YnXWRFa83rY8tKg_3d_3d

PDFs from the FDASM site.

site:www.fdasm.com filetype:pdf

John Mack’s presentation transcript PDFs.
Presentation #1 Made at 2009 FDA Hearing on Use of Social Media.
http://www.virsci.com/JMack-fdaSM-Presentation1transcript.pdf
Presentation #2 Made at 2009 FDA Hearing on Use of Social Media [PDF]
http://www.virsci.com/JMack-fdaSM-Presentation2transcript.pdf

Before any more people ask me, no, I cannot read all this and report out.

These are just a few of the things I found while I was working on the
FDASM Highlights for UM Stakeholders, pt. 1: Early Presenters as SWOT-Plus blogpost.

What If FDA Threw a Party and No One Came? BioPharma Participation in the Part 15 Social Media Meeting: http://www.eyeonfda.com/eye_on_fda/2009/11/what-if-fda-threw-a-party-and-no-one-came-biopharma-participation-in-the-part-15-social-media-meetin.html
NOTE: Evolution of the FDA’s engagement with social media in the context of the target audience.

Frydman, Gilles. #FDASM: + ca change, + c’est la meme chose. http://e-patients.net/archives/2009/11/fdasm-ca-change-cest-la-meme-chose.html
NOTE: One of the most honest, thoughtful and relevant pieces I’ve seen.

John Mack’s slides of survey results and overview of suggested best practices for social media engagement in pharma industry.

See also part two: http://www.slideshare.net/johnmackjr/social-media-rx-promotion-fda-part2

Pitts, Peter. The Caves of Caution, Complacency and Compliance. DrugWonks. http://www.drugwonks.com/blog_post/show/7051
NOTE: This is the essence of Peter’s comments as a speaker, and I really enjoyed his presentation greatly.

Pitts, Peter. The Super Bowl of Part 15 Hearings. DrugWonks. http://www.drugwonks.com/blog_post/show/7052
NOTE: Brief synopses speaker-by-speaker of highlights from the public forum.

Dose of Digital: A Sneak Preview of My FDA Social Media Hearing Testimony. http://www.doseofdigital.com/2009/11/sneak-preview-fda-social-media-hearing-testimony/

Dose of Digital: Three Things I Learned at the FDA Social Media Hearings and Three I Wish I Had. http://www.doseofdigital.com/2009/11/three-things-i-learned-at-the-fda-social-media-hearings-and-three-i-wish-i-had/

Other things I’ve found, but haven’t read or viewed yet.

The FDA Grapples with Rules for Social Media. http://www.burrillreport.com/article-1908.html

PhRMA Proposes FDA-Approved Use of Universal Safety Symbol for Branded Tweets & SE Ads. http://pharmamkting.blogspot.com/2009/11/phrma-proposes-fda-approved-use-of.html

Speaker highlights from Pixels & PIlls.
http://www.pixelsandpills.com/?tag=fdasm

Vimeo: PN Perspectives: The FDA, Social Media and the Future of Health Care Communications. http://vimeo.com/7559619