Conferences on Twitter (AIDS & Cardiology) – Hashtags of the Week (HOTW): (Week of September 1, 2014)

Mid-Event Twitter Metrics for #ESCongress via Symplur
#ESCongress Twitter Metrics: http://www.symplur.com/healthcare-hashtags/esccongress/

Even people who don’t use Twitter are usually aware of the Twitter backchannel at conferences. There are some big ones going on right now.

AMEE 2014 (medical education): #AMEE2014
APAC Forum (“social media as a transformative force in healthcare”): #SoMeTransform and #APACForum
The BMJ Awards: #thebmjawards
ESC Congress 2014 (European Society of Cardiology): #esccongress

There are almost always various healthcare conferences going on. Here is a small selection of healthcare conference hashtags coming up later this week.

Breast Cancer Symposium: #BCS14
Kaiser Permanente Irving Rasgon Family Medicine Symposium, 40th Annual: #KPFamMed
Rural and Remote Health Scientific Symposium, 4th: #ruralhealthsymp
Society for Imaging Informatics in Medicine (SIIM) Regional Meeting: #SIIMboston
Stanford Medicine X 2014: #MedX
Trauma Education: The Next Generation 2014: #TETNG14
World Congress on Cancers of the Skin: #WCCS2014

How do I find these? Partly from my Twitter stream, partly from searching, but mostly from the Symplur list.

Symplur: Healthcare Hashtag Project: Conferences: http://www.symplur.com/healthcare-hashtags/conferences/

What was probably the largest Twitter presence from a healthcare conference happened earlier this summer with the International AIDS Conference, #AIDS2014, which had almost 15,000 tweets the first day. Part of what caused the spike was the loss of so many AIDS researchers in the MH17 crash in the Ukraine as presenters tried to get to the conference. This isn’t just an idea I had, but something you can see in the tweets and their analysis. Symplur doesn’t simply serve as a tool to discover hashtags and tweets, but also provides metrics and comparisons. Here are some Twitter metrics from the AIDS2014 hashtag (you may need to click through to see the images).

Something that also happens on Twitter with conference hashtags are people planning to attend events, making arrangements to meet, promoting a presentation they hope will attract an audience, building up awareness and marketing. Sometimes you also get comments like this one about what NOT to do for using social media or the web for your event.

Oops. A BIG oops! Symplur has guidelines for Twitter hashtags that would make life difficult if the Big Data Science in Medicine folk try to use the URL as their hashtag, since it would probably not be allowed to be registered for archiving. It would probably also attract a lot of “unintended” and off-topic tweets.

The big healthcare conference on Twitter right now is the European Society of Cardiology, still going on today, with over 21,000 tweets and over 93 million impressions (so far). Here are just a few highlights from ESCCongress.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/09/02/conferences-on-twitter-aids-cardiology-hashtags-of-the-week-hotw-week-of-september-1-2014/

Infographic of the Week: HHS Infographics Collection!

HHS Infographics on Flickr
Flickr: Group: HHS Infographics: https://www.flickr.com/groups/hhsinfographics/

I just discovered a Flickr group that collects infographics from the US Department of Health and Human Services. WOW. Talk about a great resource! There are many infographics in the collection, and also marketing images for specific health challenges or initiatives.

HHS Infographics on Flickr

This isn’t all they have, though! You can many of these in sets or albums from the HHSgov Flickr Stream.

Flickr: HHS: Sets: Health Care Infographics: https://www.flickr.com/photos/hhsgov/sets/72157633968047018/

Flickr: HHS: Sets: HHS Infographics: https://www.flickr.com/photos/hhsgov/sets/72157632180365890/

Now, it is completely wonderful to have a one stop shop to go hunt health infographics from a reliable source and of known high quality. Extremely useful! But this is even better than that. Because these are in a Flickr Group, there are many other things you can do.

If you have a Flickr account, you can request to join to track the images that appear in the group, or you can use the RSS feed from the group in your feed reader.

You could set up a computer display in a public area, and start the “slideshow” view from the group as a way to engage the public around quality health information.

Because these are licensed as “United States government work,” you can download these, re-use them, post them yourself, put them on your website, edit and modify them. As they say:

Anyone may, without restriction under U.S. copyright laws:
* reproduce the work in print or digital form;
* create derivative works;
* perform the work publicly;
* display the work;
* distribute copies or digitally transfer the work to the public by sale or other transfer of ownership, or by rental, lease, or lending.

Niiiiiice.

However, because these are in Flickr, the absolute easiest way to share them is to just embed them on your webpage or site, or share the link wherever you wish. Here’s an example.

Recently, I’ve been seeing many conversations on social media, on Twitter, Facebook, and in blogs, about issues with patients access to their electronic health record and problems with the accuracy of the information in their record. Right now, this is again a timely issue. The HHS has a series of four short infographics on exactly this topic. I can choose one or any or all and, with a Flickr account, grab the embed code to put them in this blogpost without having to download or upload or rename or identify or worry about the accessibility of the code. Here’s what it looks like.

Know Your HIPAA Rights #1Know Your HIPAA Rights #2
Know Your HIPAA Rights #3Know Your HIPAA Rights #4

If someone clicks on any of the four images above, it will take them to the original image, in a larger size. The source is right there, and I didn’t have to do the work. So very helpful. I love this resource. So glad I found them!

Concerns & Clarification on the FDA Guidelines for Social Media (#FDAsm)

FDASM: FDA on Social Media

Last Tuesday afternoon, there was a Twitter chat on the new FDA guidance on social media that was hosted by the medical librarians group (#MedLibs), but which engaged an audience that also included healthcare professionals, lawyers, and communication specialists. It was a very interesting chat that touched on concerns, assumptions, misunderstandings, clarifications, and resources. You will find many of these excerpted from the full conversation and highlighted below. First, though, here is a high level summary.

Concerns included the potentail for a “chilling effect” that might impact on education, innovation, professional and patient public communications, research and clinical trial recruitment; responsibility (who is responsible for what/when/where/how with respect to health social media communications); effectiveness of social media controls for their intended purposes and the costs/benefit assessments; the role of identity, honesty, and transparency in health social media communication; and whether the guidelines will promote inclusion or foster exclusion of relevant voices in useful conversations.

Clarifications sought: plain language summaries of the guidelines; description of the potential and expected impacts on various communities of practice, including health education and patients; the relationship and responsibilities of employers and employees in their social media identity management and communications; and the issue off-label use conversations outside of pharma entities.

Clarifications which appeared during the chat (but which are note from the FDA, and therefore not the authoritative word with respect to these issues): who is covered by the guidance; community and individual efforts to create plain language distillations of the guidance; context; and a reminder that freedom of speech does not equal freedom of consequences for that speech.

For Medical Librarians: role for medical librarians in supporting and demonstrating best practices in Twitter chats; role for medical librarians in supporting education around the FDA’s guidance for their institutions as well as for patients and the public; and a caution about medical librarians being potentially excluded from social media as part institutional image controls as well as potentially as an impact of the guidance.

Takeaways: how to format an FDA-style tweet; avoid creating branded accounts for free conversation; encourage individuals to create personal accounts that are not branded and are distinct from the brand; consider correction of health misinformation as an opportunity; avoid perception of “practicing medicine” on social media, but discussions are alright; consider commenting on the FDA draft guidelines before September 17.

In addition, the conversation included discussion of best practices for identifying tweets as representing personal opinion, as well as a rich collection of resources.

CONCERNS

CLARIFICATION NEEDED

CLARIFICATION RECEIVED

FOR MEDICAL LIBRARIANS

TAKEAWAYS

FURTHER QUESTIONS

RESOURCES

New Hashtag, Nursing Ethics – Hashtags of the Week (HOTW): (Week of August 25, 2014)

SL09: SLUM: Nursing Class

There is never a shortage of great healthcare hashtags, chats, events, etcetera on Twitter, and new ones appear all the time. Nursing Ethics is an emerging hashtag which is a regular Twitter chat, but gained special attention over the past week with the Nursing Ethics Summit. There is a very active and engaged nursing community on Twitter, much of it centered around #NurseUp. The Twitter nursing community is of value for talking about professional concerns and sharing professional articles and information, problems and solutions, with a great deal of potential for nursing education. Here are just a few highlights from this newest addition to the nursing hashtags.


First posted at THL Blog: http://thlibrary.wordpress.com/2014/08/25/new-hashtag-nursing-ethics-hashtags-of-the-week-hotw-week-of-august-25-2014/

Hero Tales at We #MakeHealth Fest

Reblogged from Health Design By Us



Make Health: Personal Genomics Hero Story http://www.slideshare.net/perplexity/make-health-personal-genomics-hero-story

I was given the honor of closing remarks at the We Make Health Fest, and was pretty nervous about it frankly. I was supposed to do something on personal genomics along with the closing remarks. The very idea made me feel dizzy. I thought about it a lot for weeks without having any ideas I felt good about. One of the ideas was to make the whole thing a poem. Then I thought haiku for each section of the talk. Then I started outlining the talk and realized it sounded kind of like the Joseph Campbell’s hero’s journey, the whole Hero With a Thousand Faces idea. Last summer I was also taking the Coursera MOOC on Fantasy and Science Fiction in which we talked a lot about Propp’s functions of folktales. With all that, I got the idea to tell about personal genomics in my life as a kind of folk tale, and to talk about that experience as a representative process. That was the idea that struck roughly 24 hours before the event started. Oh.

As it turned out, there were so MANY heroes at the We Make Health Fest. So many of them had stories that contained a heroic challenge, a guide, a journey, a transformation, a rescue or solution. This was true from the very first presentation, with Joyce Lee and her son, talking about how they used Youtube to help teach schools how to keep him safe, and how the family worked together to make a large cardboard person to explain their warnings signs. Jane Berliss-Vincent described how an iPad saved a man’s life when he’d given up the will to live. Gary Olthoff made a device that was born out of long visits at hospital bedsides and seeing how nurses struggled with the mattresses. Duane Mackey overcame challenge after challenge in an engrossing story of the process that has culminated in his Open Source Mosquito Trap. The long journey to the stair-climbing wheelchair started young, in early school years, and became a mission. Mike Lee talked about how open teaching and learning resources can change lives in 3rd world countries. Marc Stephens literally transformed his own body through the use quantified self and wearable technology (and more!). Michael Flynn practically juggled the skateboard he was waving around, advocating for new opportunities for physical activities, while the McNaughton-Younger team brought their kids up on stage to help teach challenging concepts of diagnostic tools in surprisingly simple ways. Lia Min told a powerful story of being lost in a grocery story when young, and how sensory challenges can make that a much more confusing and frightening experience, then turning the story and the understanding into a tale for others, through her comic book.

Of course, our keynote speakers were both incredible, and heroes in their own right. Jose Gomez-Marquez explained how medical devices from first world countries fail in 3rd world countries, hidden costs with hidden agendas, and how simple tools and strategies can empower us all. John Costik really reached out and touched the hearts of the audience with his story of his child’s diagnosis with diabetes, how this radically changed their lives, the appearance of experts and guides who helped him along the road to creating the tools that are helping them all feel safer, and being used by so many others.

MakeHealthMontage

It wasn’t just the speakers who were heroes! In the exhibit hall, I was so thrilled to see people from e-NABLE with example Robohands, the open source prosthetic for those who may not be able to afford one. Other 3D printing experts at the event included All Hands Active, Maker Works, and the UM 3D Lab. Brian Zikmund-Fisher demonstrated tools that help people make sense of those confusing and mysterious numbers in research to help people make informed decisions through real understanding. Nanci Nanney lobbied for safe kitchens and restaurants for those with food allergies. Solus created a solution to help people with missing limbs be both more mobile and more comfortable.

We MakeHealth FESTWe MakeHealth FEST

That is just a small, very small, sampling of the heroes who were helping to make health, and who we were privileged to have at our inaugural We #MakeHealth Fest. Over coming weeks we will gradually bring out some of the videos (but it might take a while!). We will try to tell more of the stories, and introduce more of the people. If you were there, think about sharing a blogpost or tweet about what meant the most to you from the We #MakeHealth Fest.

#MakeHealth was AMAZING – Hashtags of the Week (HOTW): (Week of August 18, 2014)

It’s always a delight to have the opportunity to show off a University of Michigan event in these posts. It’s even more of a delight to show off an event of which I was so intimately a part, even though I have to confess I feel like I did very little and it was the community that really drove this magical event! I was just lucky to be among the core team at the front, along with the incredible Joyce Lee and Emily Hirshfeld! There are so very many incredible people who were involved I can’t possible thank them all.

One thing you’ll notice in these tweets is the range of media included — many photos and videos that may or may not display. To get a more engaging sense of the event as displayed in the tweets you may need to click through.

WANT MORE?


Reblogged from THL Blog: http://thlibrary.wordpress.com/2014/08/18/makehealth-was-amazing-hashtags-of-the-week-hotw-week-of-august-18-2014/

Designing Health, Making Health

Reblogged from Health Design By Us.

Health Design By Use

You may have noticed that the We Make Health Fest is sponsored by the Health Design By Us collaborative, of which Joyce Lee is the PI and I am a team member. So what is the connection, at least for us, between health design and making health? A good topic for the final post before the big event. For me, personally, my awareness of the intimate role of design in health began with doorknobs.

Doorknobs and Door Handles

Well, actually it came in the 80s when I was lucky enough to attend a presentation by Don Norman. (Yes, THAT Don Norman.) In the presentation I saw Don described what he called “The Pyschology of Everyday Things (POET).” I would have loved the talk for the name alone, but there was so much more. One of the first things Don did was to put up a whole series of slides of pictures of doorknobs and door handles, then talk about how the door tells us we should open it. He pointed out doors that don’t tell us, or confuse us; doors which seem to say ‘push’ when you need to pull and ‘pull’ when you ought to push. He showed us doors that can only be opened with two hands, with one hand, doors that want you to be righthanded or lefthanded, doors that can’t be opened at all if you are in a wheelchair, and then he showed us doors designed so well that you can open them without hands at all.

When you look at the intersection of the maker movement and healthcare, a great deal of the creativity is focused on solving problems like doorknobs. Problems that began with design that didn’t go as far as it might to include the people actually using whatever it is. With the maker movement, people might say, “Dagnabbit, why didn’t they make it THIS way?!” And then they remake it the way it should have been made in the first place. Or, if they can’t remake it themselves, they look for someone who can. Just last week

Patients think about things like this. A lot! And parents of kids. And the public.

Joyce thinks about things like this, too. (It’s part of what I love about working with her — her insight, caring, enthusiasm, excitement, energy, and her fabulous sense of humor.)

What it really takes, though, is partnerships, collaborations, people talking to other people, people who know that other people are out there interested and working on the same challenges. When Joyce has one of her design thinking workshops with a group of people, she’s encouraging them to think about the topic together, to imagine a better world, to work in teams, to leverage the insights and knowledge of one with the skills and talents of another (and then to switch places, so everyone is using insights and talents!).

Tim Brown says “design thinking” is a combination of what’s desirable, viable, and feasible. Reuven Cohen gives several overviews in Forbes, of which one says it is intelligence gathering, design, and choice, while another says the process stages are: Empathize, Define, Ideate, Prototype, Test. Wikipedia says “design thinking” is a combination of empathy, creativity, and rationality.

I like that so many of those definitions are rooted in empathy. Makers and inventors are excited by interesting problems. (So are researchers, of course.) In healthcare, there is an infinity of interesting problems. But it isn’t just about interesting problems, it’s about caring and need, that’s what starts people working on a problem. Given two equally interesting problems, the one with the greatest need, and the greatest need for heart, is the one that will get the most excitement.

In the maker community, a lot of what helps move things along is also about sharing, working together, sharing ideas and problems, digging around to find a solution. It is invention through flow (rather than by committee). When makers get together to work on a project they also brainstorm and share insights and ideas and resources. Then they go back to the drawing board until they get stuck. The ideas move from person to person, flowing around challenges (lack of resources, lack of skills) much like water flows around rocks in a stream.

Sometimes the flow moves from the person with the idea to someone with the expertise. A lot of the time, it isn’t that simple, and it flows back and forth. Having the idea is itself a kind of expertise. If we want real innovation in healthcare, we need more perspectives, more voices, more sources of imagination and creativity, skillsets that perhaps have not been traditionally valued in healthcare settings. And we have to listen, try to understand what the ideas are, where they are coming from.

With the We Make Health Fest, we’re hoping those different perspectives, voices, views, will meet, and discover each other. And then, maybe, just maybe, some of them will start something new.

“The call to care suggests a possible primary design position. … We might start from the assumption that, as designers, we do not know (yet) how the values of care are being lived and acted upon. We must interpret without (yet) being expert.” Jones PH. Design for care: innovating healthcare experience. Brooklyn, NY: Rosenfeld Media, (c)2013, p.xviii. https://rosenfeldmedia.com/books/design-for-care/

Maybe none of us are experts. Maybe all of us are experts. Maybe the kinds of expertise that will change healthcare the ways that are most needed are kinds of expertise we don’t even know how to recognize yet. But this is how we start finding out.


This was the last post before the big event on Saturday! Come to the We Make Health Fest on August 16th, 2014 in Palmer Commons at the University of Michigan or follow hashtag #makehealth on Twitter! Please follow @MakeHealthUM and @healthbyus on Twitter and please sign up for our mailing list so that you can join and contribute!