The HOTW posts are moving to Monday for now, and thank you for your patience.
This past week I noticed two themes across several different Twitter chats and communities. The first theme was the very timely topic of “Obamacare” and the Affordable Care Act, with the second theme being how patients and healthcare practitioners communicate and issues of ethics and privacy within that context. This second theme sometimes intertwined with the first, and cropped up in the monthly Twitter chat for the Journal of the American College of Radiology (#JACR), the annual meeting for the Mayo Clinic Center for Social Media (#MayoRagan and #MCCSM), the weekly Twitter chats for both Suicide Prevention through Social Media (#SPSM) and Health Care Social Media (#HCSM), as well as others. Here is a selection of tweets on these two important themes, both of which came down to listening.
AFFORDABLE CARE ACT
Just did some math #obamacare has save my family over $23,000 in the past 18 months – no joke. #hcsm
— Jewels (@She_Sugar) October 28, 2013
T1. My entire life has been in tech. This I know: version 1.0 is ONLY the FIRST version. Tech is not the #ACA. Just a gateway to it. #hcsm
— Tim C Nicholson (@timbigfish) October 28, 2013
@DrJonathan Yes, apparently there are some people who don't have pre-existing conditions — YET (probably republican) #hcsm #Obamacare
— Jewels (@She_Sugar) October 28, 2013
@MSHarleyChick @She_Sugar It's important to note that some people have no pre-existing conditions because they've never been diagnosed.
— Jonathan DO, MS, NCC (@DrJonathan) October 28, 2013
#ACA / #ObamaCare made a planning mistake by making adoption 100% dependent on interacting w/ a website. Even #Apple has stores." #hcsm
— Michael A. Weiss (@HospitalPatient) October 25, 2013
IMHO #ObamaCare should have been launched via #Internet, physical stores, #Library consultants, etc. #hcsm
— Michael A. Weiss (@HospitalPatient) October 25, 2013
COMMUNICATION IN HEALTHCARE
RT @FarrisTimimi: We should be judged by how we listen: on average, a doctor interrupts their pt after the first 23 seconds #mayoragan
— Edgar Diaz (@diptoe) October 27, 2013
If we can tie imaging, pathology, genetic panels all in a story that is centered around a pt, their dx, & common language, we win. #JACR
— CancerGeek (@CancerGeek) October 24, 2013
RT @FarrisTimimi: There are 2 professionals in the exam room: one in medicine, one the lived expert of their disease #mayoragan
— Edgar Diaz (@diptoe) October 26, 2013
T3: Ultimately pts need to control, understand importance, & own how they share their stories/data. Even w my fathers story, Im aware. #hcsm
— CancerGeek (@CancerGeek) October 28, 2013
@CancerGeek @TeamMDrs Again it comes back to the basic, "would you want to see it on a billboard on the side of the road" question. #hcsm
— Rusty Hoe (@RustyHoe) October 28, 2013
@ostrich007 @creativepharma @SPSMChat @DocForeman @WSJ We have a disclaimer for #gyncsm. Should more have them? http://t.co/J32Vi2M2CT #spsm
— Matthew Katz (@subatomicdoc) October 28, 2013
Social media is such a huge new frontier, what is acceptable and what isn't can't be defined by analog conventions. #spsm
— Laurel Ann Whitlock (@twirlandswirl) October 28, 2013
Bringing the Social Media Revolution to Patient Recruitment, a Tweet recap from our adventures at #MayoRagan http://t.co/BYsTBzbhbl
— BBK Worldwide (@BBKWorldwide) October 28, 2013
@ostrich007 There may be influences in SoMe that can make #suicide #prevention mssgs. more contagious? And we can find them? wow #spsm #hcsm
— SPSMChat (@SPSMChat) October 28, 2013
@ostrich007 @subatomicdoc @pfanderson Needs to be more education about this kind of research, and how to do it sensitively, well. #spsm
— April Foreman (@DocForeman) October 28, 2013
Hi, Mindy here. R we creating extra disincentive for people to reveal feelings in online contexts if people know data being scraped #spsm
— Mindy SchwartzBrown (@schwartzbrown) October 28, 2013
@creativepharma @SPSMChat @ostrich007 @DocForeman But @WSJ article points out easy it is to re-identify http://t.co/BBSrdq1meH #hcsm #spsm
— Matthew Katz (@subatomicdoc) October 28, 2013
Originally posted at the THL Blog: http://wp.me/p1v84h-1vN
Emerging Technologies Librarian 
You find such interesting information. I knew of scraping but taking the whole ‘moods’ board from Patients Like Me is a really blatant example. AC Neilson used to have a good reputation. So disappointed. I imagine they were hired by big pharma which will stop at nothing. I hear only Johnson & Johnson has any respect these days.
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It is a pretty wild story, but also a good example of the need for caution when putting information online in any kind of forum. Assume everyone will see it!
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