Tag Archives: accessibility

Social Media For Exclusion

First posted (with a few small editorial changes) at the Mayo Clinic Center for Social Media Blog: http://socialmedia.mayoclinic.org/discussion/social-media-for-exclusion/


Pic of the day - Sweetness

We praise the power of social media to bring people together, to engage people around topics and events of shared interest, to include. Too often we don’t stop to think that every new tool with new ways to include people is probably excluding someone else in a new way.

The accessibility of social media is rarely discussed outside of communities of persons with disabilities. When it is discussed, the people who most need to hear it (us?) may not be in the audience. When we aren’t, the work we do to try to include and engage may actually serve to accomplish the opposite.

VIDEO

The obvious example, one you probably already know about, is when you share video or use streaming tools, but lack captions. It isn’t always possible to pay for live captioning, as much as we might want to, but there are tips and tricks to get around that with low-cost options. In Second Life, the Virtual Ability community has, as a standard of practice, a roster of volunteers who offer to type into live chat a synopsis of what the speaker is saying, and who describe images on the slides for the blind. Because some conversations there are held in typed chat, they also have someone sighted volunteer to read aloud the typed chat, identifying the speakers. Why couldn’t we working in healthcare media implement something like this for streamed events?

TWITTER

Did you know about Easy Chirp? It’s a Twitter browser designed for people who are blind or visually impaired, but it can be useful for others as well. Just as with curb cuts, tools to make social media more accessible for marginalized and excluded audiences can make life easier for people who are nominally able-bodied. Accessible browsers can require less bandwidth and be more robust when you are in that crowded meeting room with a hundred people sharing wireless, just as an example.

Do you tweet using one of those marvelous fancy tools for the pros that allow you to track multiple channels at the same time? Often those will place the relevant hashtag for the channel at the beginning of each tweet. I wager you weren’t aware that this makes life harder for those with visual or cognitive challenges, because it makes it harder for them to sort out the important part of the message. Recommended practice is to place hashtags at the END of your tweets.

Also, for those hashtags which smoosh together parts of different words? Screenreaders struggle to figure out how to read those when they are all lower case or all upper case. I have a bad habit of not mixing the capitalization because it is faster when I am typing, but for screenreader, there is a world of difference between #mayoclinic and #MayoClinic. Now that I know, I am trying to be better about it, because I was excluding people when I meant to include them.

MORE

These are just a few examples, low-hanging fruit. There is a lot more to know. Luckily, there is an upcoming free webinar on social media accessibility from the ADA National Network, if you are interested in learning more. If you are here on campus, we are meeting in the Hatcher Gallery Lab to watch this together.

October 20, 2015
2:00-3:30 p.m.
Social Media and Accessibility

Advertisements

Plain Language Summaries for Translation in Science

First posted at the Krafty Librarian blog.


translationalhand1

At MLA last May, I was walking around the vendor hall, like most of us who attended, I assume. I was on a mission, though. I stopped by every vendor table that had anything to do with publishing or translational science, and talked with them at length about the idea of having plain language abstracts. I’ve been a fan of plain language initiatives for a long time, as evidenced by our library’s Plain Language Medical Dictionary app from some years ago. I wish I could say that I was doing this as a direct result of the PNAS article on the topic published in March, but no such luck. That would have helped make my arguments more compelling, I’m sure. I found the article today, thanks to the National Science Communication Institute retweeting Len Fisher.

A circuitous route, but effective enough to reach me. The article in question was this.

Lauren M. Kuehne and Julian D. Olden. Opinion: Lay summaries needed to enhance science communication. PNAS 112(12):3585–3586. doi: 10.1073/pnas.1500882112 http://www.pnas.org/content/112/12/3585

The article was short and sweet. It talked briefly (very briefly) about alternative modes of science communication, such as social media and blogs, and how they impact on audience, understanding, and adoption of new ideas. The authors then pointed out that these are limited to the few who choose to follow that channel, and it misses the benefits and affordances of mass media channels, a concept which they illustrated with a diagram of how they perceived the connections between the information channels and the audiences. Here’s the gist of it.

Scientists communicate with the public through these channels:
1) Social media and press releases
2) Journalist contacts
3) Lay abstracts
4) Traditional abstracts

The potential audiences are:
1) Public
2) Managers and decisionmakers
3) Scientists in other fields
4) Scientists in your own field

So far so good? There are obviously many more potential audiences as you subdivide these. In my conversations I was rather fond of mentioning insurance companies and agents as critical links in the chain of adopting healthcare innovations who are perhaps more likely to benefit from a plain language abstract. I also talked about the importance of highly motivated patients who take new articles to their clinicians as a recent and influential loop in the information chain that changes practice. For benefits to come through these channels requires not simply that there be a version of the abstract that is in plain language (a lay summary) but also, and equally important, that those lay summaries not be behind a paywall. One of the publishers was absolutely sure their abstracts were not being a paywall, and then when they went to show me, well (ahem), they found they were. As in, the abstracts were locked behind a paywall. Oops.

The most important part of the article’s diagram was the very subtle sideways dashes. Where do the journalists get the hook, the info that leads them to ask more questions and write those mass media articles that reach such large audiences? What triggers the journalist to reach out for those important conversations with the scientists? Well, the press releases, of course. That’s why our organizations work so hard on them. Seeing something posted and reposted on social media is another good way to reach them. But the traditional abstract? Not so much. The traditional abstract is crafted explicitly for other scientists in your field, and only partly for scientists beyond that. Now, a lay summary, a plain language abstract, that has HUGE potential as a way to reach journalists. It’s another marketing tool, beyond being the right thing to do to help patients, or to help get science into the hands of those who actually use it, or to help influence clinical practice and foster more rapid adoption of new discoveries and treatments.

#ADA25! Tech + Touch + Targets: Part Three, “Are We Done?”

SL15: VAI: ADA25

The first post in this series focused on the White House’s #ADA25 celebration and how high tech can sometimes lead to high touch, improvement of quality of life and connections. In the second post, the focus shifted from the national to the hyper-local, with the new Amtrak technology innovation in Ann Arbor that we hope will impact on rail accessibility nationwide. In this third post, I’d like to introduce you to Virtual Ability, a virtual world space that is home to a global community of persons with all kinds of disabilities

VIRTUAL ABILITY IN SECOND LIFE

Virtual Ability, Inc. (VAI) has, throughout their existence, facilitated access to resources and training for persons with disabilities around the world. This includes personal one-on-one support as well as informational, educational, advocacy and awareness events for their audience. These events engage an international community around disability advocacy. Naturally, the 25th anniversary of the signing of the United States’ Americans with Disabilities Act was not overlooked, with related activities planned for the weeks before and after the actual date. Because of the international nature of their community, events are often scheduled twice, to enable access from different hemispheres.

SL15: VAI: ADA25

Because of the complex range of disabilities supported within their community, information and presentations for their events are offered in text and audio, to support those with or without hearing as well as those with or without sight. This is standard practice for them, and a model that clearly should be adopted for webinars and livestreams and other multimedia online events. What can I say? VAI is ahead of the curve, and committed to doing it right if at all possible. FYI, they used to offer a consulting and testing service to advise organizations providing online content, and providing access to a group of engaged testers with a wide range of access challenges. Very, very valuable.

The VAI events and conversations were hosted and moderated by Gentle Heron, who also provided the voiceover for presentations provided in text.

SL15: VAI: ADA25

For the actual day of the anniversary, VAI offered four events. Two were showings of videos about the ADA then(1) and now(2), with community conversations about them; the other two were formal presentations, one about strategies and resources for personal disaster and crisis preparations (which I hope to blog about as a separate post), and another about the bare bones basics of what persons with disabilities can and should expect (and REQUEST) for accessibility for online content from organizations in the United States, how this varies globally, and why there aren’t any such guidelines for virtual world online content. This last was basically a user’s guide to WCAG, the first presentation I’ve seen like this. Most WCAG presentations are for web developers, instructing them on what to do. It is rare to see a presentation for persons with disabilities explicitly on what WCAG means for them.

SL15: VAI: ADA25SL15: VAI: ADA25
SL15: VAI: ADA25SL15: VAI: ADA25

The question that came up over and over through the day’s events was, “Are we done yet? What’s left?” It’s been 25 years, we’ve come a long ways, but there is still a lot left that needs to happen for true equality and access. Me, in real life, I was listening to these conversations sitting on my couch wearing a t-shirt that said, “Disability Rights ARE Civil Rights.”

#ADA25 TshirtDisability Rights ARE Civil Rights

The conversation was urgent, engaged, informed, and educational. People talked about the need for more accessible modes of transit; new technologies that may help the homebound get out into public life (especially exoskeletons and the Rewalk System, examples of persons with disabilities in leadership roles that influence policy for others; how the United States leadership in disability rights has influenced access and expectations in other countries; the looming cuts to social security income (SSDI) for persons with disability, and the potential impacts (“Many of us are foregoing meds already”). Ironically, the topic of foregoing meds appeared the next day in one of my Twitter chats.

This post focused on #ADA25 in virtual worlds in part because this powerful way of using technology to build community remains drastically undervalued and overlooked. That doesn’t mean there aren’t other ways in which online social spaces are being used to create community, support, and opportunity around these issues. Just take a look at #spoonies, #SpoonieChat, #a11y, #AXSchat, and the #ADA25 hashtag itself. Many of the same issues and concepts brought up in the VAI conversations and events were echoed in the Easter Seals #ADA25 Twitter chat, #ADAtoday.

If any of this intrigues you about the potential for how virtual worlds, online environments, and related technologies can support individuals and communities with disabilities, you might want to also take a look at this recent video describing the VAI community.

#ADA25! Tech + Touch + Targets: Part Two, “Our New Technology”

#ADA25 Amtrak New Accessible Technology #a11y

To continue the series on “what I did for #ADA25,” I’d like to talk about the very exciting event here in town last week, in which Ann Arbor sets the stage for a national high speed rail system, and access for persons with disability is at the core of making this possible.

#ADA25 Amtrak New Accessible Technology #a11y

AMTRAK

The event was the ribbon cutting for the new disability-accessible platform at the Ann Arbor Amtrak station.

“New disability-accessible platform opens at Ann Arbor Amtrak station” http://www.mlive.com/news/ann-arbor/index.ssf/2015/07/new_disability_platform_opens.html

The event started out with the mayor, Chris Taylor, describing the importance of the University of Michigan Health System and hospitals in providing advanced health care to the residents of the State of Michigan, and how critical accessible rail transport is for supporting this.

Lt. Governor Brian Calley noted, “Acceptance & awareness are important, but inclusion is a game changer.”

Richard Bernstein, Judge of the Michigan Supreme Court, waxed eloquent, clearly joyful and delighted with this innovation. You can hear his full remarks on Soundcloud.

Joe McHugh (Amtrak’s Senior Vice President) described this as “the flagship of our new technology,” continuing with the vision and possibilities that would come from this.

Joe really meant technology, too! The new boarding platform is retractable, and extends toward the train when in use. The Amtrak press release describes it as “The platform mechanically extends toward the train, bridging the gap created when a level-boarding platform is needed. This next generation of passenger-focused technology will allow America’s Railroad® to deliver a modern passenger railroad that is accessible to all.” That wasn’t the limit of the tech, either. In addition to designing the platform, the interactive portions of the tech, they also had to design manual tech to support the process in case of problems with the automated portions or for situations that require special extra support.

#ADA25 Amtrak New Accessible Technology #a11y

As with all ribbon-cutting events, the actual story started long long before. Or stories, I should say. This event sprang from the intersection of many stories, many people’s experiences. There are the local folk who fought for a better way to take the train, and helped make people aware of the reasons why it should start HERE. There were wheelchair passengers who complained about being put on a jack, hoisted into mid-air, and left dangling in the rain while the station staff try to get the logistics sorted out. There were the Amtrak staff who helped people with luggage, moms with strollers, elderly folk climbing the narrow stairs into or out of the Amtrak cars.

The story that resonated most powerfully with me was told by Richard Devylder, the U.S. DOT’s Senior Advisor for Accessible Transportation.

#ADA25 Amtrak New Accessible Technology #a11y

Richard was born without arms or legs. The combination of his experience, his intelligence, his connections with the community of persons with disabilities all help to inform his position and influence change. And when the opportunity presents itself, he absolutely will go for the brass ring.

That’s kind of what happened one day a few years ago. Richard described a room full of transportation higher ups. He asked, “Well, do you want to see high speed rail in the United States?” Yes, yes, yes, they all did. The next thing Richard said? “Then you have to find a way to let people like me board the train in less than 15 minutes.” BOOM.

That was one story. He had another good one. Richard described one day when he was trying to get on the train, and a ramp had been set up to allow him to board. But he couldn’t even get on the ramp because it was so crowded with people. Elderly with walkers. Parents with strollers. People with heavy rolling bags of luggage. Part of him thought, “Hey, why are all these people blocking my ramp?” Immediately he realized it is because all of them also needed a ramp, and the one provided for him was the only one there. BOOM #2!

We need ramps for boarding trains absolutely as much as we need curb cuts. The next ADA25 story I’ll be telling is about a group of people in virtual worlds. They were pretty impressed when I told them about this new Amtrak platform. Then they asked, “But why did it take 25 years? And why is there only ONE in the entire United States?” More on that in the next post.

The actual ribbon cutting, with Gary Talbot as the honored local person who pushed the hardest to make this happen.

And then people could board!

#ADA25 Amtrak New Accessible Technology #a11y
#ADA25 Amtrak New Accessible Technology #a11y


Updated to include Gary Talbot’s name.

25th Anniversary of the Americans with Disabilities Act: A Personal Timeline [#ADA25]

ADA 25th Anniversary

The 25th anniversary of the signing into law of the Americans with Disabilities Act is this week. Disability, accessibility, and usability are frequent topics in this blog. I can’t let this pass without a post (despite being rather delinquent with posting since our move into our new library, but more on that another time). But what do I have to offer? There are countless people around the country writing about what has changed since the ADA came into effect, and how much remains to do. There are organizations devoted to #ADA25 with toolkits for organizing your own events. There are celebrations at the White House and most of the state capitals, and beyond. (Resources and links towards the end of this post.) So what can I do? Perhaps just share my own stories of disability experiences in my own life.

MY PERSONAL DISABILITY EXPERIENCE TIMELINE

These are mostly stories from long before the ADA was signed into law. Back then, having a disability was shameful and stigmatized, denied and hidden if at all possible. Accommodations wasn’t even a concept that most people could hold in their mind. The language used to discuss disabilities was stigmatizing and hurtful, at best. You had to have a thick skin. Then, as far as we knew, my family was all able-bodied. We know better now. Several of us in my family have something not quite right with our bodies or minds. I suspect this is true for many families. The families I’ve met with extreme good health are often from cultures where disabilities is still heavily stigmatized, so I’m never quite sure if they are truly as healthy as they say, or if they are also in denial.

Eating sorrel at recess

I was in grade school, probably 2nd grade. There was a red-headed boy with freckles who was new to our class and a lot bigger than everyone else. He had been held back because he couldn’t pass the grade, so he was taking 2nd grade over again. His parents had transferred him to the Catholic school hoping that he’d get more support at a private school than in the public school system. These days we wouldn’t hold the kid back, but would have them tested for a learning disability, get a diagnosis, figure out the accommodations, and design an IEP. No one would play with him. He was new, big, a little scary, and people thought there was something wrong with him. No one was sure what, but they didn’t want to get too close. It was the contagion theory of disability. “Oops! He has cooties! It’s catching!”

I was a victim of the same contagion theory. My brother also had some undiagnosed disability (later discovered to be on the autism spectrum). The other kids wanted to steer clear of him, and by association, me as well. Not every one, and not all the time. Sometimes people would play with me. Not like the red-headed boy. No one EVER played with him. So I took him under my wing. At recess we’d go over to a big tree, sit in the dirt, and talk. I was really smart, and he wasn’t, at least in the same way, but he thought hard about things and had good questions. I’d answer his questions, and I enjoyed playing teacher. One of the things I showed him was the sorrel growing wild in the grass under the tree, that tasted tart and salty at the same time. At the end of the year, he didn’t pass again, and was held back again, or transferred again. I don’t know. I never saw him after that year. 

One leg shorter

A few years later, my family transferred all of us to a public school because we couldn’t afford the fees. In my new class there was a boy who had one leg that was shorter than the other. He’d had polio when he was little, and almost died, I was told. But he didn’t die, it just messed up his leg. Even so, he was taller than me. Quiet. I mean, REALLY quiet. I don’t remember him ever talking without being ordered to. He wore glasses, had dark hair that he wore almost down to his shoulders (which just wasn’t done then), with long bangs that fell over his face. In those days, we wouldn’t have called him disabled, it was just there were things he couldn’t do. He was that little bit ‘different,’ and boy, did he know it! I wanted to talk to him and get to know him (I thought he was kind of cute), but he didn’t talk to anyone.

Smart as a whip, too bad about the wheelchair

There were two Anderson families in my town that had large families. Mine was one, and there was another one. In middle school, I got to meet one of the kids from the other Anderson family. Ken Anderson was in a wheelchair, I didn’t know why. His disability was big and obvious and he couldn’t hide it. He was smart, social, and people liked him. There was never a shortage of folk who would help push his chair. Ken went on to found a student organization for people with “handicaps” (that was the lingo then) at the University of Iowa. It was called Restrict Us Not (RUN). He had a successful accounting career, and founded his own business. Ken died last winter.

Put the pedal to the metal

In high school, Jeff Benson was a year ahead of me. Jeff had also had polio (I’m old enough to remember getting the vaccine on sugar cubes). For him, it wasn’t just one leg, and not just a little. Both legs were effected. He could have used a wheelchair, but I remember him walking with arm braces. Bright, shiny light hair, gritty and determined, and always the life of the party. He was a live wire! He was a drummer for a popular band, and really belted it out. I remember when he got his first set of wheels. At that age, I didn’t know it was possible for people with wheelchairs to drive. I’m not sure anyone in town had seen a car like this before! His parents had the red hotrod modified to use hand brakes, and I remember him waving to his audience, as he’d roar out of the parking lot with the top down. We lost Jeff just a couple months ago.

Hiding in plain sight

In college, one year, I took Italian. It was a small class. The university didn’t allow classes to be taught unless they had a minimum of six students. We managed to barely scrape by with just the required number to allow us to take the class for the full year. There was one young man who was a senior for the second time. He was in engineering, and they wouldn’t allow him to graduate until he had a full year of a foreign language. He had already flunked out of every other foreign language taught at the school, and this was his last chance to graduate. He struggled, but we all helped him along. Towards the end of the year, the rest of us went off to the side and had a conversation. We had all figured out that he had dyslexia. Did he know? Did he know there are resources to help? Should we talk to him about it? Life could be easier, you know! So we did. We brought it up the last day of class. We mentioned that we knew he had to be absolutely brilliant to have gotten along this far with good grades and no one knowing. He completely panicked. He’d been trying to hide it for his entire school career, and was terrified that we would tell someone and he’d never be able to get a job.

Keeping her safe from romance

After college, I worked at the university library. Someone brought in one of the faculty who was blind to talk about how she used information resources. She was brilliant, obviously, sturdy, and with a huge sense of humor, but life wasn’t built for people with visual impairments, and she had no vision at all. How had she gotten through school and become a faculty member? What struck us the most about her story was when she complained that they had no audiobooks of Harlequin romances. She explained that people with disabilities were considered too fragile to have any interest in sex or romance, and so the organizations that would pay to make audio copies of her academic research information needs would not pay for “smut.” A couple of the gals took matters into their own hands and corralled a group of volunteers. We all took a chapter, and recorded a “smutty” romance novel for her.

Closing Thoughts

I could go on. There are many more stories. As the time of the ADA came closer, I have more and more stories of people wanting to learn more and understand about the barriers. After the ADA was signed, I have stories of some incredibly bone-headed things people did in the name of “accommodation.” When I moved here to Ann Arbor, I was initially shocked by the lack of accessibility for the library I was to manage, and how difficult it was to find people on campus aware of web accessibility. We got an elevator for my library, and then we got a campus web accessibility working group. 

First Meeting of the University of Michigan Web Accessibility Interest Group
1pm on Tuesday August 7, 2007, in a meeting room in the School of Public Health.

There is still a lot to do, but we keep trying. Meanwhile, over the years, many if my friends and family have been diagnosed with temporary, chronic, or permanent health issues ofone  sort or another. Disability advocacy started out for me as something I wanted to do for others, because I love to help people. Now it is personal. As I age, it becomes more and more personal. Without the ADA, I probably wouldn’t even have a job. I wouldn’t have been able to get past a few major health hurdles in the past few decades. Because of the protection of the law, I was able to get accommodations and keep working. I hope that what I do will continue to be useful for years to come. 


RESOURCES AND LINKS

ADA Anniversary Toolkit: http://adaanniversary.org/
Proclamation (Organizations & Government Entities)
Pledge for Individuals
Faith Communities
Resources
ADA Information: http://www.adainformation.org/
Quizbook
ADA Legacy Project: http://www.adalegacy.com/ada25
ADA National Network (Great Plains ADA Center): https://adata.org/ada-anniversary
Timeline of the American with Disabilities Act
National ADA Systematic Review
ADA 25 Celebrate: https://www.youtube.com/channel/UCbUCwPT82s4WnKwnc-vEQyw
Disability.gov ADA25 Social Media Toolkit: https://www.disability.gov/newsroom/ada-25-social-media-toolkit/
Smithsonian: EveryBody: An Artifact History of Disability in America: https://everybody.si.edu/
Access to resources often comes through technology
Communication, Transportation, Medicine, War

Hashtags:
#ADA
#ADA25
#DgovADA25

THEN


Senator Harkin Delivers Floor Speech in American Sign Language Upon Passage of the ADA: https://www.youtube.com/watch?v=BomPo6fPOOo

ADA History Playlist: https://www.youtube.com/playlist?list=PLhUAlIEq4gbqCK_3_ls2K2Rtiq6hPumHa

NOW

The ADA at 25: Promise, Progress, Opportunity U.S. Senate Bill Sponsor Hon. Tom Harkin https://www.youtube.com/watch?v=yToAav3qqBU

National Center on Health, Physical Activity and Disability (NCHPAD): Real People, Real Stories: Celebrating 25 Years of the ADA https://www.youtube.com/playlist?list=PLwMObYmlSHaNT-gke7PoQqkc_k22dYqN5


What has changed since the ADA was passed 25 years ago? https://www.youtube.com/watch?v=mW4hB2hcPBM

http://hr.umich.edu/webaccess/
http://chronicle.com/blogs/profhacker/how-to-evaluate-your-web-pages-for-accessibility/60485?cid=wc&utm_source=wc&utm_medium=en

Introduction to Usability & Accessibility for Medical Librarians

Last week’s Twitter chat for medical librarians (#medlibs) was on topics near and dear to my heart: accessibility and usability. I (a) was impressed by the caliber of the conversation, and (b) wanted to collect the good links and ideas in a place that would make it easy to find for other medical librarians. So, here is a Storify. I particularly recommend the links.

GPII Gives me GOOSEBUMPS!

GPII Introductory Video

We all use technology every day. Well, people reading this blog, anyway. We use it, and everywhere we go, we either carry our own devices or spend time fiddling and fussing to make it work right. Or both. So, … have you heard about GPII?

GPII
Global Public Inclusive Infrastructure (GPII): http://www.gpii.net/

It gives me goosebumps, it really does. I’ve been hearing about this via Jane Vincent, author of “Making the Library Accessible to All” and a colleague here at the University of Michigan. Jane has been working on this project for a long time, before she came here. We are so very lucky to have her here and be informed literally at the ground level as this evolves. So what is it? What does “Global Public Inclusive Infrastructure” actually MEAN? It is the ultimate (for now) in portable technology personalization. Basically, how do you prefer to set up your computer? Now, code that into a little snippet, kind of like a credit card, and you take that with you wherever you go. Want to use a computer? Wave your magic card, and voilà! It’s set up just the way you like it.

I am, of course, oversimplifying, so here is a video introduction, and a video demo. Watch them both, and see if they don’t give you goosebumps, too!

Global Public Inclusive Infrastructure (GPII) w/captions and description:

Human Rights Museum Demo Instructions:

A big part of what I like about it is the community behind the idea and the process. Here’s a grateful nod to the following engaged and supporting organizations.

Cloud 4 All
FLOE Project
FLUID Project (which is worth an entire blogpost on their own!)
Prosperity 4 All
Raising the Floor
TRACE Center, University of Wisconsin