Tag Archives: events

Comics, Graphic Medicine, and Creating Stigma Awareness: A Panel

Comics, Graphic Medicine, and Creating Stigma Awareness

Last week I mentioned this year’s Investing in Ability events, and that I’m involved with one. Well, this is it! Friday afternoon you can join us to talk about “Comics, Graphic Medicine, and Creating Stigma Awareness.”

The panel includes:

* Susan Brown of the Ypsilanti District Library, who coordinates their Graphic Medicine collection;
* David Carter of the Duderstadt Library, who coordinates the University of Michigan Libraries’ Comics and Graphic Novels collection;
* Anne Drozd of the Ann Arbor District Library on their comics, webcomics, and related collections and activities; AND
* Lloyd Shelton, of the Office of Services for Students with Disabilities.

Each of the librarians will talk about how stigma, stereotypes, and bullying are portrayed in their collections, with Susan focusing on Graphic Medicine, Dave on mainstream comics, and Anne on indie and manga. Lloyd will respond to they stories they highlight from the point of view of a person with disabilities. This promises to be a phenomenal event, and I hope you can join us:

October 16, Friday
Hatcher Library, Gallery (map)
3pm-5pm

The event is in an accessible location, and will be audio-recorded.

Stigma Barricades Ability: Investing in Ability at UM

Investing in Ability, UMich

I truly cannot express how delighted and proud I am of the University of Michigan, their Council for Disability Concerns, and especially my dear colleague Anna Schnitzer, for their annual hosting of a rich series of events focused on issues at the intersection of disability and ability. This year, the special topic of focus is: “Stigma, Stereotypes, and Bullying.” I will be hosting one of the events (more on that shortly), but I wanted first to introduce the entire series of events, and highlight resources from past events and one of the early events in this year’s series.

Investing in Ability: Main Page: http://ability.umich.edu/iaw/

A text list of events:

2015 INVESTING IN ABILITY: Stigma, Stereotypes, and Bullying

One of this year’s speakers at a previous event, Michigan Supreme Court Justice Richard Bernstein.

Richard Bernstein, Investing in Ability, University of Michigan Oct 21, 2013 https://www.youtube.com/watch?v=X8akD5vLLhA

Investing in Ability events explore stigma, stereotypes and bullying for persons with disabilities.

Now that you know how to find the rest of the events, here are the highlights from one earlier this week, a very passionate and information-rich presentation on the role of Stigma in Muslim Mental-Health, and how that has very real impacts on all of America.

Stigma in Muslim-American Mental Health https://storify.com/pfanderson/stigma-in-muslim-american-mental-health

White House Champions and the Dream of Personalized, Precision Medicine (#WHChamps)

White House Champions of Change - Precision Medicine #WHChamps

A couple weeks ago, I had just started a blogpost on the White House Precision Medicine Initiative, when I heard that within the HOUR there would be an update from the White House on this very topic, livestreamed! I scrambled, livetweeted, and this is no longer the post I had planned to write, but a rather different one, that has taken a good bit more time than what I had planned. The ‘update’ on the Precision Medicine Initiative turned out to be a White House Champions event. I had not previously heard of the White House Champions, but it turns out this is a wonderful series of events that have been going on through Obama’s Presidency honoring community innovators in a wide range of topics & issues where America has needed innovation:
AIDS/HIV,
campuses,
citizen science,
crowdfunding,
disaster preparedness,
domestic violence,
education (several of these events for different challenges),
food security,
LGBT,
libraries and museums,
NASA,
open government,
open science,
Parkinson’s disease,
public health and prevention,
science equality for women and persons with disabilities,
suicide prevention,
tech innovation and inclusion,
veterans (several of these events for different challenges),
youth homelessness,
youth violence,
and much, much, MUCH more! My mind is just ringing with all that I’ve missed, and all the wonderful creative innovators I don’t yet know about. How did I miss all of this?

At least I didn’t miss the Precision Medicine event! Here are the honorees, and the treasures they have shared with us, in a very small terse form.

Marcia Boyle (MB’s blogpost about the Immune Deficiency Foundation (IDF). Find them on Twitter at @MarciaIDF and @IDFCommunity)

Hugh Campos (HC’s blogpost about data liberation. Find him on Twitter @HugoOC)

Elizabeth Gross Cohn (EGC’s blogpost on the Adelphi University Center for Health Innovation, their Communities of Harlem Health Revival, and their interactive graphic novel. Find her on Twitter at @Chi_Cohn)

Amy Gleason (AG’s blogpost about CareSync. Find her on Twitter at @ThePatientsSide)

Amanda Haddock (AH’s blogpost about Dragon Master Foundation. Find them on Twitter at @AmandaHaddock and @DragonMasterFdn)

Emily Kramer-Golinkoff (EKG’s blogpost about Emily’s Entourage. Find them on Twitter at @emilykg1 and @EmsEntourage4CF)

Howard Look (HL’s blogpost about Tidepool. Find them on Twitter at @HowardLook and @Tidepool_org)

Dorothy Reed (DR’s blogpost about Sisters Network of Central New Jersey (SNCNJ). Find SNCNJ on Twitter at @sistercentral)

Anish Sebastian (AS’s blogpost about Babyscripts. Find him on Twitter at @ASebastian87 and @Babyscripts)

Here is the best Storify I’ve found of the #WHChamps event, by E. Keeley Moore.

It’s amazing that there were over 1000 tweets per minute at the peaK. Here is the Symplur archive of all the event’s tweets:

Symplur: Healthcare Hashtag Project: #WHChamps http://embed.symplur.com/twitter/transcript?hashtag=WHChamps&fdate=07%2F08%2F2015&shour=05&smin=25&tdate=07%2F09%2F2015&thour=00&tmin=00

Did you miss it and want to see it? The entire hour-long event was recorded and is available in the White House Youtube channel.

White House Champions of Change – Precision Medicine https://www.youtube.com/watch?v=yi1Tw1narVo

Aaron, Lost, and Found Again

Panel: Open Access Activism, The Story of Aaron Swartz, with lessons for libraries and information.

Panel: Open Access Activism, The Story of Aaron Swartz, with lessons for libraries and information.

It’s been a couple years since Aaron died. Aaron who? Aaron Swartz. I’ve talked about him here a few times (Jan. 14, 2013; Jan. 15, 2013; Feb 2013; Jan 2014). Aaron was one of those bright and shining young stars, who did amazing things at early ages (helped code RSS at age 14?). reimagined ways to access information (see his fantastic Image Atlas collaboration with Taryn Simon), made very clear challenges with the status quo, and promised a future with much to contribute. That didn’t happen quite the way people hoped. In case you haven’t heard of him, there are a few links at the end of this post. Here is a quote from his dad at his memorial.

“We can’t bring Aaron back, he can no longer be the tireless worker for good… What we can do is change things for the better. We can work to change MIT so that it . . . once again becomes a place where risk and coloring outside the lines is encouraged, a space where the cruelties of the world are pushed back and our most creative flourish rather than being crushed.” https://www.bostonglobe.com/metro/2014/03/29/the-inside-story-mit-and-aaron-swartz/YvJZ5P6VHaPJusReuaN7SI/story.html

The University of Michigan is planning a really fantastic event this month looking at the circumstances of Aaron’s death, the factors that led up to it, the changes that have come after it, and how this has and is changing the information landscape and legal context in which libraries operate. Even better, you get to see the movie for FREE! Here is the event information.

Panel: Open Access Activism
Wednesday, June 17 at 4:00pm
Library Gallery, Hatcher Graduate Library, University of Michigan

Panelists:
Melissa Levine, U-M Library’s Lead Copyright Officer
Jack Bernard, U-M Associate General Counsel
Brian Knappenberger, Director, The Internet’s Own Boy: The Story of Aaron Swartz

Brian Knappenberger’s film chronicles the story of Aaron Swartz, information-access activist and Internet prodigy, who was targeted by the FBI in a high-profile criminal case involving JSTOR and MIT at the time of his death. Join Knappenberger, along with Lead Copyright Officer Melissa Levine, and Associate General Counsel Jack Bernard in a panel discussion about the issues of the case and how they relate to libraries and information both more generally and at the University of Michigan.

Film Screening: The Internet’s Own Boy: The Story of Aaron Swartz
Tuesday, June 16 at 7:00pm
Join us for this free screening with the filmmaker at Michigan Theater the evening prior to the panel.

LINKS

AaronSw (his site): http://www.aaronsw.com/

Wikipedia: Aaron Swartz: http://en.wikipedia.org/wiki/Aaron_Swartz

The inside story of MIT and Aaron Swartz: More than a year after Swartz killed himself rather than face prosecution, questions about MIT’s handling of the hacking case persist: https://www.bostonglobe.com/metro/2014/03/29/the-inside-story-mit-and-aaron-swartz/YvJZ5P6VHaPJusReuaN7SI/story.html

Remember Aaron Swartz: http://www.rememberaaronsw.com/memories/

Naughton, John. Aaron Swartz stood up for freedom and fairness – and was hounded to his death: The internet activist who paid the ultimate price for his combination of genius and conscience. The Guardian 7 February 2015 18.00 EST. http://www.theguardian.com/commentisfree/2015/feb/07/aaron-swartz-suicide-internets-own-boy

The Life of Aaron Swartz (a collection from the Internet Archive of the rich activity surrounding his loss): https://www.archive-it.org/collections/3492

BBC Four: Storyville: The Internet’s Own Boy http://www.bbc.co.uk/programmes/b051wkry [IMDB: http://www.imdb.com/title/tt3268458/ ] [Review: http://www.theguardian.com/film/2014/aug/31/internets-own-boy-review-aaron-swartz-mark-kermode ]

Internet Activist, a Creator of RSS, Is Dead at 26, Apparently a Suicide http://www.nytimes.com/2013/01/13/technology/aaron-swartz-internet-activist-dies-at-26.html?_r=0

Medicine X – Hashtags of the Week (HOTW): (Week of September 8, 2014)

Stanford Medicine X

Medicine X started late last Thursday, and then ran for the next three days with a SOLIDLY packed program. I tried to follow as much as I could, in between kids, dogs, appliance deliveries, etc. I’m tired. But it was really awesome. There were a bunch of hashtags, but the core one was #MedX. There were, of course, presenters and participants from here, including Joyce Lee and Brian Stork, both of whom gave Grand Rounds on the University of Michigan campus last year. The livestream included what was on the main stage, so I wasn’t able to see their presentations, but there will be video in Youtube eventually. For today, I want to share some highlights from the almost 50,000 tweets over the four days. Among the highlights you’ll see a lot about the future of medical education, patient engagement, and stories in healthcare. To paraphrase the famous Susannah Fox, if these are headlines from the future of healthcare, what are they saying?


First posted at THL Blog: http://thlibrary.wordpress.com/2014/09/08/medicine-x-hashtags-of-the-week-hotw-week-of-september-8-2014/

#MakeHealth was AMAZING – Hashtags of the Week (HOTW): (Week of August 18, 2014)

It’s always a delight to have the opportunity to show off a University of Michigan event in these posts. It’s even more of a delight to show off an event of which I was so intimately a part, even though I have to confess I feel like I did very little and it was the community that really drove this magical event! I was just lucky to be among the core team at the front, along with the incredible Joyce Lee and Emily Hirshfeld! There are so very many incredible people who were involved I can’t possible thank them all.

One thing you’ll notice in these tweets is the range of media included — many photos and videos that may or may not display. To get a more engaging sense of the event as displayed in the tweets you may need to click through.

WANT MORE?


Reblogged from THL Blog: http://thlibrary.wordpress.com/2014/08/18/makehealth-was-amazing-hashtags-of-the-week-hotw-week-of-august-18-2014/

Make Health Fest Coming August 16!

Detroit Maker Faire 2013#UMSIMakerfest !!!Ann Arbor Mini Maker Faire 2013
Ann Arbor Mini Maker Faire 2013Ann Arbor Mini Maker Faire 2014Detroit Maker Faire 2013
Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2014Ann Arbor Mini Maker Faire 2013

We Make Health Fest
Saturday, Aug 16th, 2014
University of Michigan
Palmer Commons, Great Lakes Rooms

Short Description
“A collaborative event for a local and virtual community interested in health, technology, and participatory design. Join us for a full day of health themed design and maker activities!”

Longer Description
Many types of events are being triggered by the creativity of the Maker Movement — maker faires, mini-maker faires, maker camps, maker festivals, maker fests and makerfests, make-a-thons and createathons (also spelled makeathon or makethon), open make events, maker madness events, maker shows — and they come in all sizes, flavors, and themes. What does that mean? Think of it as a mash-up of science fair PLUS Hands On Museum or Exploratorium PLUS do it yourself! It’s all about learning and creating and problemsolving through a combination of Show+Tell+Do! Here at the University of Michigan, many people on campus are partnering on taking the “maker culture” energy and applying it through a lens focused on health to promote participatory and collaborative strategies in healthcare. Come, have fun, learn, make stuff, but more than that, meet other interesting and creative people who are interested in using what they have, know, and can do to Make Health!

Learn More!

Make Health: http://makehealth.us/
Twitter: @MakeHealthUM
Google Plus: Make Health UM

A project of HealthDesignBy.Us
Twitter: @HealthByUs
Blog: Introducing @HealthByUs

We Make Health


First posted at THL Blog: http://thlibrary.wordpress.com/2014/06/25/make-health-fest-coming-august-16/